Evidence map›Paper›PMID 26406130›Full record

ArticleJournal of Parkinson's disease2015

Feasibility of Virtual Research Visits in Fox Trial Finder.

E Ray Dorsey, Joseph D Wagner, Michael T Bull, Ashley Rizzieri, Justin Grischkan, Meredith A Achey, Todd Sherer, Sohini Chowdhury, Claire Meunier, Lily Cappelletti and 7 more

Open access · hybridAbstract read
In one paragraph

Article in Journal of Parkinson's disease, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 42 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
42citing papers in PubMed, 1 pooled it
1.3field-weighted citation impact, top 20% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

42 citing papers in PubMed, 1 synthesis or guideline pooled it, 64 citations in OpenAlex.

  1. Pooled it
  2. Trial
  3. Televisits for Parkinson's disease: benefits and barriers.Journal of neural transmission (Vienna, Austria : 1996) · 2026
    Review
  4. Article
  5. Article
  6. Article
  7. Review
  8. Article
  9. Article
  10. Article
  11. Review
  12. Article
  13. Article
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  15. Article
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  17. Article
  18. A Modified Progressive Supranuclear Palsy Rating Scale for Virtual Assessments.Movement disorders : official journal of the Movement Disorder Society · 2022
    Article
  19. Observational
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

17 authors at 5 institutions in 1 country.

E Ray DorseyDepartment of Neurology, University of Rochester Medical Center, Rochester, New York, United States.
Joseph D WagnerUniversity of Rochester, Rochester, New York, United States.
Michael T BullDepartment of Neurology, University of Rochester Medical Center, Rochester, New York, United States.
Ashley RizzieriUniversity of Rochester, Rochester, New York, United States.
Justin GrischkanUniversity of Rochester School of Medicine and Dentistry, Rochester, New York, United States.
Meredith A AcheyCHET, University of Rochester Medical Center, Rochester, New York, United States.
Todd ShererThe Michael J. Fox Foundation For Parkinson's Research, New York, United States.
Sohini ChowdhuryThe Michael J. Fox Foundation For Parkinson's Research, New York, United States.
Claire MeunierThe Michael J. Fox Foundation For Parkinson's Research, New York, United States.
Lily CappellettiThe Michael J. Fox Foundation For Parkinson's Research, New York, United States.
Charlotte RockerThe Michael J. Fox Foundation For Parkinson's Research, New York, United States.
Irene H RichardDepartment of Neurology, University of Rochester Medical Center, Rochester, New York, United States.
Heidi SchwarzDepartment of Neurology, University of Rochester Medical Center, Rochester, New York, United States.
Gail KangUniversity of California Berkeley, Berkeley, California, United States.
Stacy H AhmadDepartment of Cell Biology and Pathology, Thomas Jefferson University, Philadelphia, PA, United States.
Rachel A BiemillerDepartment of Neurology, University of Rochester Medical Center, Rochester, New York, United States.
Kevin M BiglanDepartment of Neurology, University of Rochester Medical Center, Rochester, New York, United States.
University of Rochester Medical Center · USMichael J. Fox Foundation · USUniversity of Rochester · USThomas Jefferson University · USUniversity of California, Berkeley · US

Funding

EXPERIMENTAL THERAPEUTICS IN NEUROLOGICAL DISEASET32NS007338 · NINDS · UNIVERSITY OF ROCHESTER · PI ROBERT G. HOLLOWAY, Michael P McDermott · 1990 to 2026
$6.4M
6 · The paper itself

Abstract

backgroundFox Trial Finder is an online registry for individuals with and without Parkinson disease (PD) interested in participating in PD research. However, distance or disability could prevent such individuals from participating in traditional, clinic-based research at major centers.

objectiveUse videoconferencing to connect participants to specialists to: (1) demonstrate feasibility of virtual research visits within this population (2) collect phenotypic data of the participants, (3) validate self-reported diagnosis, and (4) gauge interest in virtual research visits.

methodsWe solicited volunteers throughout the United States through Fox Trial Finder. Interested individuals with PD provided consent, were given web cameras if needed, completed baseline surveys, and downloaded videoconferencing software remotely. Participants had a test connection and assessment appointment which included the Montreal Cognitive Assessment (MoCA), then a virtual research visit with a neurologist who reviewed their history and assessed their PD using a modified Movement Disorders Society Unified Parkinson's Disease Rating Scale. Neurologists assessed PD diagnosis and symptomatology. Physicians and participants were surveyed about their experience.

resultsOf 204 individuals who consented, 166 (81% ) individuals from 39 states completed all visits. The mean age was 62 and mean disease duration was 8.0 years. Mean MoCA score was 26.5, and mean modified MDS-UPDRS motor score was 22.8 (out of a possible 124). Neurologists judged PD as the most likely diagnosis in 97% of cases. Overall satisfaction with the visits was 79% (satisfied or very satisfied) among neurologists and 93% among participants.

conclusionsThrough virtual research visits, neurologists engaged, characterized, and validated self-reported diagnosis in individuals with PD over a broad geography. This model may facilitate future research participation.

Indexed as

RegistriesFeasibility StudiesHumansInternetMiddle AgedParkinson DiseaseSurveys and QuestionnairesTelemedicineUnited StatesVideoconferencingParkinson diseasetelemedicine

Identifiers

PMID26406130
PMCPMC4923707
OpenAlexW2302502828

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.