Evidence map›Paper›PMID 26404703›Full record

ArticleJournal of autism and developmental disorders2016

Brief Report: Recruitment and Retention of Minority Children for Autism Research.

Irina Zamora, Marian E Williams, Marcia Higareda, Barbara Y Wheeler, Pat Levitt

Registry-linked trialAbstract read
PubMed Publisher
In one paragraph

Article in Journal of autism and developmental disorders, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03548779 (North Carolina Genomic Evaluation by Next-generation Exome Sequencing, 2), which is not on this map. Cited by 24 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
24citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03548779 nacompletednot on this mapstarted 2018, after this paper: background citation

North Carolina Genomic Evaluation by Next-generation Exome Sequencing, 2

TypeinterventionalSponsorUniversity of North Carolina, Chapel HillRan2018 to 2024Enrolled548ConditionsEpilepsy, Seizure, Neuromuscular Diseases, Brain MalformationArmsPre-visit prep, usual care + exome seq
3 · Its place in the literature

Who cites it

24 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Trial
  3. Randomized Study of Survey Recruitment Strategies for Parents of Autistic Children.Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners
    Trial
  4. Article
  5. Autism in Viet Nam: A systematic scoping review.Autism : the international journal of research and practice · 2026
    Article
  6. Article
  7. Review
  8. Article
  9. Unpacking the prevalence: A warning against overstating the recently narrowed gap for Black autistic youth.Autism research : official journal of the International Society for Autism Research · 2024
    Article
  10. Article
  11. Review
  12. Article
  13. Article
  14. Review
  15. Review
  16. Article
  17. Article
  18. Article
  19. Observational
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Irina ZamoraUSC University Center for Excellence in Developmental Disabilities, Children's Hospital Los Angeles, University of Southern California, 4650 Sunset Blvd., MS#53, Los Angeles, CA, 90027, USA. izamora@chla.usc.edu.ORCID http://orcid.org/0000-0003-2029-5857
Marian E WilliamsUSC University Center for Excellence in Developmental Disabilities, Children's Hospital Los Angeles, University of Southern California, 4650 Sunset Blvd., MS#53, Los Angeles, CA, 90027, USA. mwilliams@chla.usc.edu.
Marcia HigaredaBoone Fetter Clinic, Children's Hospital Los Angeles, Los Angeles, CA, USA.
Barbara Y WheelerUSC University Center for Excellence in Developmental Disabilities, Children's Hospital Los Angeles, University of Southern California, 4650 Sunset Blvd., MS#53, Los Angeles, CA, 90027, USA. bwheeler@chla.usc.edu.
Pat LevittInstitute for the Developing Mind, Children's Hospital Los Angeles, Keck School of Medicine of University of Southern California, 4650 Sunset Blvd, Los Angeles, CA, 90027, USA. plevitt@med.usc.edu.

Funding

The MET Signaling System,Autism and Gastrointestinal DysfunctionR21HD065289 · NICHD · UNIVERSITY OF SOUTHERN CALIFORNIA · PI LEVITT, PAT · 2009 to 2010
$570k
NICHD NIH HHS R21 HD065289
6 · The paper itself

Abstract

Given the underrepresentation of ethnic minorities in health research (Heiat et al. in Arch Int Med 162(15):1-17, 2002; Kelly et al. in J Nat Med Assoc 97:777-783, 2005; United States Department of Health and Human Services. Monitoring adherence to the NIH policy on the inclusion of women and minorities as subjects in clinical research. http://orwh.od.nih.gov/research/inclusion/reports.asp , 2013), this study evaluated promising strategies to effectively recruit Latinos into genetic research on autism spectrum disorders (ASD). The study included 97 children, aged 5-17 years, with ASD; 82.5 % of the participants were identified as Latino/Hispanic. Traditional and culture-specific recruitment and retention strategies were compared between the Latino and non-Latino groups. Culture-specific, parent-centered approaches were found to be successful in engaging and retaining Latino participants for research involving genetic testing.

Indexed as

Patient SelectionAdolescentAutistic DisorderChildFemaleHumansMaleMinority GroupsUnited StatesAutism spectrum disorderGenetic researchLatinoRecruitment

Identifiers

PMID26404703

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.