Evidence map›Paper›PMID 26402711›Full record

ArticleJournal of clinical medicine2015

Quality of Life with Macular Degeneration Is Not as Dark as It May Seem: Patients' Perceptions of the MacDQoL Questionnaire.

Lisa M Ord, JoAnne Wright, Margaret M DeAngelis, Michael Feehan

Abstract read
In one paragraph

Article in Journal of clinical medicine, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Review
  2. Improvement of the Quality of Life in Patients with Age-Related Macular Degeneration by Using Filters.International journal of environmental research and public health · 2020
    Article
  3. Past and prognosis of anti-VEGF therapy for wet age-related macular degeneration-the future has begun.Graefe's archive for clinical and experimental ophthalmology = Albrecht von Graefes Archiv fur klinische und experimentelle Ophthalmologie · 2018
    Article
  4. Article
  5. Reliability, validity and responsiveness of the Greek MacDQoL individualized measure of the impact of macular degeneration on quality of life.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2017
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Lisa M OrdSchool of Medicine, University of Utah, John A. Moran Eye Center, Salt Lake City, UT 84132, USA. lisa.ord@hsc.utah.edu.
JoAnne WrightDivision of Occupational Therapy, College of Health, University of Utah, Salt Lake City, UT 84108, USA. joanne@xmission.com.
Margaret M DeAngelisSchool of Medicine, University of Utah, John A. Moran Eye Center, Salt Lake City, UT 84132, USA. margaret.deangelis@utah.edu.
Michael FeehanCollege of Pharmacy, University of Utah, Salt Lake City, UT 84112, USA. mike.feehan@utah.edu.

Funding

University of Utah, Core Vision Research GrantP30EY014800 · NEI · UTAH STATE HIGHER EDUCATION SYSTEM--UNIVERSITY OF UTAH · PI PAUL STEVEN BERNSTEIN · 2005 to 2026
$14.6M
NEI NIH HHS P30 EY014800
6 · The paper itself

Abstract

To determine the perceived relevance and value of an individualized measure of the impact of macular degeneration on quality of life (QoL) for elderly people with Age-Related Macular Degeneration (AMD) in the USA, through the assessment of the suitability of the measure's domains and by gaining a deeper insight into the impact of AMD on patients' QoL vis-á-vis these domains, community-dwelling older adults in the metropolitan Salt Lake City, Utah area were interviewed using the macular degeneration on quality of life (MacDQoL) instrument. Participants felt that the MacDQoL was a relevant instrument for use in this US study population, though it could be improved by adding items pertaining to transportation, and independent driving, in particular, as an important QoL indicator. The emerging theme from analysis of the respondent's commentary was that, in spite of AMD, these respondents were committed to engage in, and enjoy life. This is an important concept for clinicians and those who offer support programs to integrate into their care planning and reinforce in messaging to patients with the condition.

Indexed as

age-related macular degenerationMacDQoL Questionnairequality of lifevisual impairment

Identifiers

PMID26402711
PMCPMC4600162

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.