Evidence map›Paper›PMID 26396227›Full record

ArticlePalliative medicine2016

They know!-Do they? A qualitative study of residents and relatives views on advance care planning, end-of-life care, and decision-making in nursing homes.

Georg Bollig, Eva Gjengedal, Jan Henrik Rosland

Abstract read
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In one paragraph

Article in Palliative medicine, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 62 papers, 5 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
62citing papers in PubMed, 5 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

62 citing papers in PubMed, 5 syntheses or guidelines pooled it.

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  19. The Involvement of Caregivers in the End-of-life Care of an Older Adult Living in a Long-term Care Home: A Qualitative Case Study with Nurses and Relatives.The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres · 2024
    Article
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2 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

3 authors.

Georg BolligDepartment of Clinical Medicine, University of Bergen, Bergen, Norway Sunniva Centre for Palliative Care, Department of Internal Medicine, Haraldsplass Deaconess Hospital Bergen, Bergen, Norway Department of Anesthesiology, Intensive Care, Palliative Medicine and Pain Therapy, HELIOS Klinikum Schleswig, Schleswig, Germany bollig.georg@gmx.de.
Eva GjengedalDepartment of Global Public Health and Primary Care, University of Bergen, Bergen, Norway Molde University College, Molde, Norway.
Jan Henrik RoslandDepartment of Clinical Medicine, University of Bergen, Bergen, Norway Sunniva Centre for Palliative Care, Department of Internal Medicine, Haraldsplass Deaconess Hospital Bergen, Bergen, Norway.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundResidents living in long-term care facilities are a vulnerable population. For many residents, a nursing home is their place of death. Palliative care and end-of-life decisions are important components of their care provision.

aimTo study the views of cognitively able residents and relatives on advance care planning, end-of-life care, and decision-making in nursing homes.

designA qualitative study with in-depth interviews with nursing home residents and focus group interviews with relatives of nursing home residents. Analysis is based on interpretive description. SETTING/

participantsIn total, 43 informants from nine nursing homes participated in the study (25 nursing home residents and 18 relatives). All included residents had capacity to provide informed consent and lived in long-term care.

resultsThe main findings of this study were the differing views about decision-making and advance care planning of residents and relatives. Residents do trust relatives and staff to make important decisions for them. The relatives are in contrast insecure about the residents' wishes and experience decision-making as a burden. The majority of the residents had not participated in advance care planning. None of the residents stated challenges connected to end-of-life care or mentioned the wish for euthanasia.

conclusionAlthough most residents seem to be satisfied with decision-making and end-of life care, there is a need for systematic advance care planning. Advance care planning could help to explore future wishes for care and ease decision-making for the relatives, physicians, and staff and should be offered to all cognitively able nursing homes residents.

Indexed as

Advance Care PlanningDecision MakingHealth Knowledge, Attitudes, PracticeNursing HomesTerminal CareAgedAged, 80 and overFamilyFemaleHumansInterviews as TopicMalePatientsQualitative Researchadvance care planningdecision-makingend-of-life carefamilylong-term careNursing homespalliative careresidential facilities

Identifiers

PMID26396227
PMCPMC4838176

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.