ReviewJournal of the American Board of Family Medicine : JABFM
Lessons Learned from Developing a Patient Engagement Panel: An OCHIN Report.
Review in Journal of the American Board of Family Medicine : JABFM. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02298361 (Innovative Methods for Parents And Clinics to Create Tools), which is not on this map. Cited by 23 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Innovative Methods for Parents And Clinics to Create Tools (IMPACCT) for Kids' Care
Who cites it
23 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Patient and public engagement in priority setting: A systematic rapid review of the literature.PloS one · 2018Pooled it
- The Use of Arts-Based Methods to Enhance Patient Engagement in Health Research.Health expectations : an international journal of public participation in health care and health policy · 2024Review
- Community partner coauthorship for increased implementation science impact: Strengthening capacity and engagement.Journal of clinical and translational science · 2024Article
- Article
- Partner-developed electronic health record tools to facilitate social risk-informed care planning.Journal of the American Medical Informatics Association : JAMIA · 2023Article
- Creating research-ready partnerships: the initial development of seven implementation laboratories to advance cancer control.BMC health services research · 2023Article
- Stakeholder engagement infrastructure to support multicenter research networks: Advances from the clinical research networks participating in PCORnet.Learning health systems · 2023Article
- A Cross Sectional Survey of Recruitment Practices, Supports, and Perceived Roles for Unaffiliated and Non-scientist Members of IRBs.AJOB empirical bioethics · 2023Article
- The impact of patient engagement on trials and trialists in Ontario, Canada: An interview study with IMPACT awardees.Research involvement and engagement · 2022Article
- Patient Involvement in Medical Education Research: Results From an International Survey of Medical Education Researchers.Journal of patient experience · 2021Article
- "They heard our voice!" patient engagement councils in community-based primary care practices: a participatory action research pilot study.Research involvement and engagement · 2020Article
- Patient-oriented research competencies in health (PORCH) for researchers, patients, healthcare providers, and decision-makers: results of a scoping review.Research involvement and engagement · 2020Article
- Using Patient and Family Engagement Strategies to Improve Outcomes of Health Information Technology Initiatives: Scoping Review.Journal of medical Internet research · 2019Article
- Leadership in practice-based research: The National Dental PBRN.Journal of dentistry · 2019Review
- Patient stakeholder engagement in research: A narrative review to describe foundational principles and best practice activities.Health expectations : an international journal of public participation in health care and health policy · 2019Review
- The Role of Participants in a Medical Information Commons.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2019Article
- Patient Engagement in Community Health Center Leadership: How Does it Happen?Journal of community health · 2018Article
- Building Meaningful Patient Engagement in Research: Case Study From ADVANCE Clinical Data Research Network.Medical care · 2018Article
- Introductory Overview of the Natural Experiments for Translation in Diabetes 2.0 (NEXT-D2) Network: Examining the Impact of US Health Policies and Practices to Prevent Diabetes and Its Complications.Current diabetes reports · 2018Review
- Engaging patients in health research: identifying research priorities through community town halls.BMC health services research · 2017Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
There is renewed interest in patient engagement in clinical and research settings, creating a need for documenting and publishing lessons learned from efforts to meaningfully engage patients. This article describes early lessons learned from the development of OCHIN's Patient Engagement Panel (PEP). OCHIN supports a national network of more than 300 community health centers (CHCs) and other primary care settings that serve over 1.5 million patients annually across nearly 20 states. The PEP was conceived in 2009 to harness the CHC tradition of patient engagement in this new era of patient-centered outcomes research and to ensure that patients were engaged throughout the life cycle of our research projects, from conception to dissemination. Developed by clinicians and researchers within our practice-based research network, recruitment of patients to serve as PEP members began in early 2012. The PEP currently has a membership of 18 patients from 3 states. Over the past 24 months, the PEP has been involved with 12 projects. We describe developing the PEP and challenges and lessons learned (eg, recruitment, funding model, creating value for patient partners, compensation). These lessons learned are relevant not only for research but also for patient engagement in quality improvement efforts and other clinical initiatives.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.