ArticlePalliative medicine2016
Development of a model for integrated care at the end of life in advanced dementia: A whole systems UK-wide approach.
Article in Palliative medicine, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02840318 (The Compassion Intervention), which is not on this map. Cited by 14 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
The Compassion Intervention: A Pilot Study of Enhanced Integrated Care for People With Severe Memory Problems
Who cites it
14 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Impact of home healthcare on end-of-life outcomes for people with dementia: a systematic review.BMC geriatrics · 2022Pooled it
- Models of care for palliative care in residential aged care facilities: a scoping review.BMC geriatrics · 2026Article
- Moral distress - a threat to dementia care? A qualitative study of nursing staff members' experiences in long-term care facilities.BMC health services research · 2022Article
- Context, mechanisms and outcomes in end-of-life care for people with advanced dementia: family carers perspective.BMC palliative care · 2019Article
- Exemplary Care among Chinese Dementia Familial Caregivers.Healthcare (Basel, Switzerland) · 2018Article
- Meaningful connections in dementia end of life care in long term care homes.BMC psychiatry · 2018Article
- Living and dying with advanced dementia: A prospective cohort study of symptoms, service use and care at the end of life.Palliative medicine · 2018Article
- Better palliative care for people with a dementia: summary of interdisciplinary workshop highlighting current gaps and recommendations for future research.BMC palliative care · 2017Article
- Article
- Palliative care for people with dementia in the terminal phase: a mixed-methods qualitative study to inform service development.BMC palliative care · 2017Article
- An ethnographic study of strategies to support discussions with family members on end-of-life care for people with advanced dementia in nursing homes.BMC palliative care · 2016Article
- Context, mechanisms and outcomes in end of life care for people with advanced dementia.BMC palliative care · 2016Article
- Integrated Nonpharmacological Intervention for Patients with MCI-A Preliminary Study in Shanghai, China.International journal of integrated careArticle
- Navigating late-stage dementia: A perspective from the Alzheimer's Association.Alzheimer's & dementia (Amsterdam, Netherlands)Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
16 authors.
Funding
Abstract
backgroundThe prevalence of dementia is rising worldwide and many people will die with the disease. Symptoms towards the end of life may be inadequately managed and informal and professional carers poorly supported. There are few evidence-based interventions to improve end-of-life care in advanced dementia.
aimTo develop an integrated, whole systems, evidence-based intervention that is pragmatic and feasible to improve end-of-life care for people with advanced dementia and support those close to them.
designA realist-based approach in which qualitative and quantitative data assisted the development of statements. These were incorporated into the RAND/UCLA appropriateness method to achieve consensus on intervention components. Components were mapped to underlying theory of whole systems change and the intervention described in a detailed manual. SETTING/
participantsData were collected from people with dementia, carers and health and social care professionals in England, from expert opinion and existing literature. Professional stakeholders in all four countries of the United Kingdom contributed to the RAND/UCLA appropriateness method process.
resultsA total of 29 statements were agreed and mapped to individual, group, organisational and economic/political levels of healthcare systems. The resulting main intervention components are as follows: (1) influencing local service organisation through facilitation of integrated multi-disciplinary care, (2) providing training and support for formal and informal carers and (3) influencing local healthcare commissioning and priorities of service providers.
conclusionUse of in-depth data, consensus methods and theoretical understanding of the intervention components produced an evidence-based intervention for further testing in end-of-life care in advanced dementia.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.