Evidence map›Paper›PMID 26351182›Full record

ArticleBMJ open2015

Capturing the experiences of patients across multiple complex interventions: a meta-qualitative approach.

Fiona Webster, Jennifer Christian, Elizabeth Mansfield, Onil Bhattacharyya, Gillian Hawker, Wendy Levinson, Gary Naglie, Thuy-Nga Pham, Louise Rose, Michael Schull and 5 more

Abstract readEvaluation Study
In one paragraph

Article in BMJ open, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
17citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

17 citing papers in PubMed, 2 syntheses or guidelines pooled it.

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  6. Integrated Care ModelInternational journal of environmental research and public health · 2022
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Fiona WebsterDepartment of Family and Community Medicine and the Institute of Health Policy Management and Evaluation, University of Toronto, Toronto, Ontario, Canada.
Jennifer ChristianDepartment of Medicine, University of Toronto, Toronto, Ontario, Canada.
Elizabeth MansfieldDepartment of Medicine, University of Toronto, Toronto, Ontario, Canada.
Onil BhattacharyyaDepartment of Family and Community Medicine and the Institute of Health Policy Management and Evaluation, University of Toronto, Toronto, Ontario, Canada Women's College Research Institute, Women's College Hospital, Toronto, Ontario, Canada.
Gillian HawkerDepartment of Medicine, University of Toronto, Toronto, Ontario, Canada.
Wendy LevinsonDepartment of Medicine, University of Toronto, Toronto, Ontario, Canada.
Gary NaglieDepartment of Medicine, University of Toronto, Toronto, Ontario, Canada.
Thuy-Nga PhamDepartment of Family and Community Medicine and the Institute of Health Policy Management and Evaluation, University of Toronto, Toronto, Ontario, Canada South East Toronto Family Health Team, Toronto East General Hospital, Toronto, Ontario, Canada.
Louise RoseLawrence S. Bloomberg Faculty of Nursing, University of Toronto; Provincial Centre of Weaning Excellence/Prolonged Ventilation Weaning Centre, Toronto East General Hospital, Toronto, Ontario, Canada.
Michael SchullDepartment of Medicine, University of Toronto, Toronto, Ontario, Canada Health System Planning & Evaluation Research Program, Institute of Clinical Evaluative Sciences, Toronto, Ontario, Canada.
Samir SinhaHealth System Planning & Evaluation Research Program, Institute of Clinical Evaluative Sciences, Toronto, Ontario, Canada.
Vicky StergiopoulosCentre for Research on Inner City Health, Li Ka Shing Knowledge Institute, St. Michael's Hospital, Toronto, Ontario, Canada Department of Psychiatry, University of Toronto, Toronto, Ontario, Canada.
Ross UpshurDepartment of Family and Community Medicine and the Institute of Health Policy Management and Evaluation, University of Toronto, Toronto, Ontario, Canada Bridgepoint Health, Bridgepoint Collaboratory for Research and Innovation, Toronto, Ontario, Canada.
Lynn WilsonDepartment of Family and Community Medicine and the Institute of Health Policy Management and Evaluation, University of Toronto, Toronto, Ontario, Canada.
BRIDGES Collaborative

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesThe perspectives, needs and preferences of individuals with complex health and social needs can be overlooked in the design of healthcare interventions. This study was designed to provide new insights on patient perspectives drawing from the qualitative evaluation of 5 complex healthcare interventions.

settingPatients and their caregivers were recruited from 5 interventions based in primary, hospital and community care in Ontario, Canada.

participantsWe included 62 interviews from 44 patients and 18 non-clinical caregivers.

interventionOur team analysed the transcripts from 5 distinct projects. This approach to qualitative meta-evaluation identifies common issues described by a diverse group of patients, therefore providing potential insights into systems issues. OUTCOME MEASURES: This study is a secondary analysis of qualitative data; therefore, no outcome measures were identified.

resultsWe identified 5 broad themes that capture the patients' experience and highlight issues that might not be adequately addressed in complex interventions. In our study, we found that: (1) the emergency department is the unavoidable point of care; (2) patients and caregivers are part of complex and variable family systems; (3) non-medical issues mediate patients' experiences of health and healthcare delivery; (4) the unanticipated consequences of complex healthcare interventions are often the most valuable; and (5) patient experiences are shaped by the healthcare discourses on medically complex patients.

conclusionsOur findings suggest that key assumptions about patients that inform intervention design need to be made explicit in order to build capacity to better understand and support patients with multiple chronic diseases. Across many health systems internationally, multiple models are being implemented simultaneously that may have shared features and target similar patients, and a qualitative meta-evaluation approach, thus offers an opportunity for cumulative learning at a system level in addition to informing intervention design and modification.

Indexed as

Attitude to HealthDelivery of Health Care, IntegratedCaregiversChronic DiseaseHumansInterviews as TopicOntarioProfessional-Patient RelationsProspective StudiesQualitative ResearchMENTAL HEALTHPRIMARY CAREQUALITATIVE RESEARCH

Identifiers

PMID26351182
PMCPMC4563230

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.