Evidence map›Paper›PMID 26343948›Full record

ArticleBiology of blood and marrow transplantation : journal of the American Society for Blood and Marrow Transplantation2016

User-Centered Design Groups to Engage Patients and Caregivers with a Personalized Health Information Technology Tool.

Molly Maher, Elizabeth Kaziunas, Mark Ackerman, Holly Derry, Rachel Forringer, Kristen Miller, Dennis O'Reilly, Larry C An, Muneesh Tewari, David A Hanauer and 1 more

Registry-linked trialAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Biology of blood and marrow transplantation : journal of the American Society for Blood and Marrow Transplantation, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06991673 (Adolescent Surgery Roadmap Feasibility and Acceptability Study), which is not on this map. Cited by 41 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
41citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06991673 naenrolling by invitationnot on this mapstarted 2025, after this paper: background citation

Adolescent Surgery Roadmap Feasibility and Acceptability Study

TypeinterventionalSponsorUniversity of MichiganRan2025 to 2029Enrolled100ConditionsPediatric Surgical ProceduresArmsBehavioral Treatment
3 · Its place in the literature

Who cites it

41 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Pooled it
  2. Interventions to increase patient portal use in vulnerable populations: a systematic review.Journal of the American Medical Informatics Association : JAMIA · 2019
    Pooled it
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  17. Meeting the challenge: Health information technology's essential role in achieving precision medicine.Journal of the American Medical Informatics Association : JAMIA · 2021
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Molly MaherSchool of Information, University of Michigan, Ann Arbor, Michigan; School of Public Health, University of Michigan, Ann Arbor, Michigan.
Elizabeth KaziunasSchool of Information, University of Michigan, Ann Arbor, Michigan.
Mark AckermanSchool of Information, University of Michigan, Ann Arbor, Michigan; Department of Electrical Engineering and Computer Science, University of Michigan, Ann Arbor, Michigan.
Holly DerryCenter for Health Communications Research, University of Michigan, Ann Arbor, Michigan.
Rachel ForringerCenter for Health Communications Research, University of Michigan, Ann Arbor, Michigan.
Kristen MillerCenter for Health Communications Research, University of Michigan, Ann Arbor, Michigan.
Dennis O'ReillyCenter for Health Communications Research, University of Michigan, Ann Arbor, Michigan.
Larry C AnCenter for Health Communications Research, University of Michigan, Ann Arbor, Michigan.
Muneesh TewariDepartment of Internal Medicine, Hematology/Oncology Division and Molecular Medicine and Genetics Division, University of Michigan, Ann Arbor, Michigan; Department of Biomedical Engineering, University of Michigan, Ann Arbor, Michigan; Biointerfaces Institute, University of Michigan, Ann Arbor, Michigan; Center for Computational Medicine and Bioinformatics, University of Michigan, Ann Arbor, Michigan; Comprehensive Cancer Center, Bioinformatics Core, University of Michigan, Ann Arbor, Michigan.
David A HanauerSchool of Information, University of Michigan, Ann Arbor, Michigan; Comprehensive Cancer Center, Bioinformatics Core, University of Michigan, Ann Arbor, Michigan; Department of Pediatrics, University of Michigan, Ann Arbor, Michigan.
Sung Won ChoiDepartment of Pediatrics, University of Michigan, Ann Arbor, Michigan; Blood and Marrow Transplantation Program, University of Michigan, Ann Arbor, Michigan. Electronic address: sungchoi@med.umich.edu.

Funding

Phase II Trial of Vorinostat plus Tacrolimus and Mycophenolate to Prevent GVHDK23AI091623 · NIAID · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI CHOI, SUNG WON · 2011 to 2015
$658k
Personalized Engagement Tool for Pediatric BMT Patients and CaregiversR21HS023613 · AHRQ · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI CHOI, SUNG WON · 2014 to 2015
$300k
AHRQ HHS 1R21HS023613AHRQ HHS R21 HS023613NIAID NIH HHS 1K23AI091623NIAID NIH HHS K23 AI091623
6 · The paper itself

Abstract

Health information technology (IT) has opened exciting avenues for capturing, delivering and sharing data, and offers the potential to develop cost-effective, patient-focused applications. In recent years, there has been a proliferation of health IT applications such as outpatient portals. Rigorous evaluation is fundamental to ensure effectiveness and sustainability, as resistance to more widespread adoption of outpatient portals may be due to lack of user friendliness. Health IT applications that integrate with the existing electronic health record and present information in a condensed, user-friendly format could improve coordination of care and communication. Importantly, these applications should be developed systematically with appropriate methodological design and testing to ensure usefulness, adoption, and sustainability. Based on our prior work that identified numerous information needs and challenges of HCT, we developed an experimental prototype of a health IT tool, the BMT Roadmap. Our goal was to develop a tool that could be used in the real-world, daily practice of HCT patients and caregivers (users) in the inpatient setting. Herein, we examined the views, needs, and wants of users in the design and development process of the BMT Roadmap through user-centered Design Groups. Three important themes emerged: 1) perception of core features as beneficial (views), 2) alerting the design team to potential issues with the user interface (needs); and 3) providing a deeper understanding of the user experience in terms of wider psychosocial requirements (wants). These findings resulted in changes that led to an improved, functional BMT Roadmap product, which will be tested as an intervention in the pediatric HCT population in the fall of 2015 (ClinicalTrials.govNCT02409121).

Indexed as

AdultAgedCaregiversHumansMedical InformaticsMiddle AgedPrecision MedicineCaregiverDesign groupEngagementHealth ITHematopoietic cell transplantationPediatricUser-centered design

Identifiers

PMID26343948
PMCPMC4716891

What OpenQuestion holds

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Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.