Evidence map›Paper›PMID 26341889›Full record

ArticleInternational journal of qualitative studies on health and well-being2015

The lived experiences of adolescents with sickle cell disease in Kingston, Jamaica.

Andrea Brown Forrester, Antoinette Barton-Gooden, Cynthia Pitter, Jascinth L M Lindo

Abstract read
In one paragraph

Article in International journal of qualitative studies on health and well-being, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
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  4. Review
  5. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Andrea Brown ForresterThe UWI School of Nursing, Faculty of Medical Sciences, University of the West Indies, Kingston, Jamaica.
Antoinette Barton-GoodenThe UWI School of Nursing, Faculty of Medical Sciences, University of the West Indies, Kingston, Jamaica.
Cynthia PitterThe UWI School of Nursing, Faculty of Medical Sciences, University of the West Indies, Kingston, Jamaica.
Jascinth L M LindoThe UWI School of Nursing, Faculty of Medical Sciences, University of the West Indies, Kingston, Jamaica; jaslindo@hotmail.com; jascinth.lindo02@uwimona.edu.jm.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

aimTo explore the lived experiences of adolescents with sickle cell disease, in Kingston, Jamaica.

methodA descriptive qualitative design was used for this research. In-depth interviews were conducted with six adolescents with sickle cell disease at a Sickle Cell Unit operated by the University of the West Indies. Interviews were audiotaped, transcribed, and thematically analyzed.

resultsThe majority of the adolescents demonstrated a positive self-concept. They reported strong family, school, and peer support which made them feel accepted. All were actively engaged in social activities such as parties, but had challenges participating in sporting activities. Various coping strategies were utilized to address challenges of the disease including praying, watching television, and surfing the Internet.

conclusionSickle cell disease can be very challenging for the adolescent, but with positive self-concept and increased social support, especially from family and peers, these adolescents were able to effectively cope with their condition and live productive lives.

Indexed as

Adaptation, PsychologicalAttitude to HealthSelf ConceptSocial SupportAdolescentAdolescent BehaviorAnemia, Sickle CellFamilyFemaleHumansJamaicaMalePeer GroupQualitative ResearchStudentsYoung AdultAdolescenceJamaicalived experiencepsychosocialsickle cell disease

Identifiers

PMID26341889
PMCPMC4560734

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.