ArticleBMC cancer2015
Exploring research participation among cancer patients: analysis of a national survey and an in-depth interview study.
Article in BMC cancer, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
12 citing papers in PubMed.
- Motivations and experiences of patients with respiratory disease and their caregivers in a multinational trial of mirtazapine for severe breathlessness: a qualitative study (BETTER-B).BMC pulmonary medicine · 2025Trial
- Participation in cancer survivorship survey research: Differences by rurality and age.Journal of clinical and translational science · 2025Article
- What is the effect of a low literacy talking book on patient knowledge, anxiety and communication before radiation therapy starts? A pilot study.Journal of medical radiation sciences · 2022Article
- Factors influencing cancer patients' experiences of care in the USA, United Kingdom, and Canada: A systematic review.EClinicalMedicine · 2022Review
- Health Literacy and Clinical Trial Participation in French Cancer Patients: A National Survey.Current oncology (Toronto, Ont.) · 2022Article
- Article
- "Something Good Has to Come Out of the Horror": A Qualitative Examination of Cancer Survivors' Attitudes Towards Participation in Research During the First Year of the COVID-19 Pandemic.Frontiers in public health · 2021Article
- Higher Distress in Patients with Breast Cancer Is Associated with Declining Breast Reconstruction.Plastic and reconstructive surgery. Global open · 2020Article
- Challenges and opportunities using online portals to recruit diverse patients to behavioral trials.Journal of the American Medical Informatics Association : JAMIA · 2019Article
- Health Research Participation, Opportunity, and Willingness Among Minority and Rural Communities of Arkansas.Clinical and translational science · 2018Article
- Barriers to non-small cell lung cancer trial eligibility.Contemporary clinical trials communications · 2018Article
- Knowledge, attitudes, and perception of 398 cancer patients toward participation in clinical trials: A single-center study from New Delhi, India.Perspectives in clinical researchArticle
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundInequalities in cancer research participation are thought to exist with certain groups under-represented in research populations; however, much of the evidence is based on small-scale studies. The aim of this study was to explore data from in-depth interviews with cancer patients and a large national survey to investigate variation in who is asked to participate in research and who takes part.
methodsFactors associated with research discussion and participation were explored in National Cancer Patient Experience Survey data using multivariate logistic regression and during in-depth interviews with 25 breast cancer patients.
resultsSurvey data were available for 66,953 cancer patients; 30.4% reported having discussions about, and 18.9% took part in, research. Barriers to participation at staff, patient and trust level were evident; for example, staff were less likely to discuss research with older patients, Asian and black patients were less likely to take part and patients treated at specialist or teaching trusts had higher levels of discussion and participation. Interviews showed that patients' willingness to participate changed over time and was not synonymous with participation as some were ineligible.
conclusionSome patient groups were less likely to have discussions about or participate in research. Analysis of this variation vis-à-vis the composition of the patient population may be useful to ensure that there is equity regarding the potential benefits of research participation and that research findings are applicable to target populations in the translational model.
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