SynthesisJournal of the American Medical Informatics Association : JAMIA2016
What do we know about developing patient portals? a systematic literature review.
Synthesis in Journal of the American Medical Informatics Association : JAMIA, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 58 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
58 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- The State of Evidence in Patient Portals: Umbrella Review.Journal of medical Internet research · 2020Pooled it
- Patient Portals Facilitating Engagement With Inpatient Electronic Medical Records: A Systematic Review.Journal of medical Internet research · 2019Pooled it
- Understanding Monitoring Technologies for Adults With Pain: Systematic Literature Review.Journal of medical Internet research · 2017Pooled it
- Mind the Gap. A systematic review to identify usability and safety challenges and practices during electronic health record implementation.Applied clinical informatics · 2016Pooled it
- Patient-reported outcomes in radiotherapy (PRO-RT) utilizing an integrated patient portal; results from a prospective single-arm trial.JAMIA open · 2026Article
- Factors Influencing User Satisfaction in Accessing Health Data: Cross-Sectional Survey of United Kingdom Adults.JMIR human factors · 2026Article
- Adoption of Personal Health Records in Dutch Hospitals and Private Medical Clinics: Longitudinal Study.Journal of medical Internet research · 2025Article
- Parent-Reported Usability of a Patient Portal-Based Asthma Care Tool for Parents of Children With Asthma.Pediatric pulmonology · 2025Article
- Designing an interoperable patient portal to augment an Advanced Nurse Practitioner service for Children with hydrocephalus.International journal of nursing studies advances · 2024Article
- Article
- Using implementation science to evaluate a population-wide genomic screening program: Findings from the first 20,000 In Our DNA SC participants.American journal of human genetics · 2024Article
- Patient Portals as Facilitators of Engagement in Patients With Diabetes and Chronic Heart Disease: Scoping Review of Usage and Usability.Journal of medical Internet research · 2023Article
- Alerts and Collections for Automating Patients' Sensemaking and Organizing of Their Electronic Health Record Data for Reflection, Planning, and Clinical Visits: Qualitative Research-Through-Design Study.JMIR human factors · 2023Article
- The State-of-the-Art of Patient Portals: Adapting to External Factors, Addressing Barriers, and Innovating.Applied clinical informatics · 2023Review
- Anticipating adaptation: tracking the impact of planned and unplanned adaptations during the implementation of a complex population-based genomic screening program.Translational behavioral medicine · 2023Article
- New Ways for Patients to Make Sense of Their Electronic Health Record Data Using the Discovery Web Application: Think-Aloud Evaluation Study.JMIR formative research · 2023Article
- Contextual Factors That Impact the Implementation of Patient Portals With a Focus on Older People in Acute Care Hospitals: Scoping Review.JMIR aging · 2023Article
- Patterns in the Use of Heart Failure Telemonitoring: Post Hoc Analysis of the e-Vita Heart Failure Trial.JMIR cardio · 2023Article
- Multilayer framework for digital multicomponent platform design for colorectal survivors and carers: a qualitative study.Frontiers in public health · 2023Article
- Disparities in patient portal access by US adults before and during the COVID-19 pandemic.JAMIA open · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveNumerous articles have reported on the development of patient portals, including development problems and solutions. We review these articles to inform future patient portal development efforts and to provide a summary of the evidence base that can guide future research. MATERIALS AND
methodsWe performed a systematic review of relevant literature to answer 5 questions: (1) What categories of problems related to patient portal development have been defined? (2) What causal factors have been identified by problem analysis and diagnosis? (3) What solutions have been proposed to ameliorate these causal factors? (4) Which proposed solutions have been implemented and in which organizational contexts? (5) Have implemented solutions been evaluated and what learning has been generated? Through searches on PubMed, ScienceDirect and LISTA, we included 109 articles.
resultsWe identified 5 main problem categories: achieving patient engagement, provider engagement, appropriate data governance, security and interoperability, and a sustainable business model. Further, we identified key factors contributing to these problems as well as solutions proposed to ameliorate them. While about half (45) of the 109 articles proposed solutions, fewer than half of these solutions (18) were implemented, and even fewer (5) were evaluated to generate learning about their effects. DISCUSSION: Few studies systematically report on the patient portal development processes. As a result, the review does not provide an evidence base for portal development.
conclusionOur findings support a set of recommendations for advancement of the evidence base: future research should build on existing evidence, draw on principles from design sciences conveyed in the problem-solving cycle, and seek to produce evidence within various different organizational contexts.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.