Evidence map›Paper›PMID 26332477›Full record

ArticleSouthern medical journal2015

Primary Care Providers' Comfort Levels in Caring for Patients with Sickle Cell Disease.

Lauren N Whiteman, Carlton Haywood, Sophie Lanzkron, John J Strouse, Leonard Feldman, Rosalyn W Stewart

Registry-linked trialAbstract read
PubMed Publisher
In one paragraph

Article in Southern medical journal, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06562439 (Early Identification and Intervention Of Developmental Delay Among Infants And Toddlers With Sickle Cell Disease Using the Sickle Cell Caregiver Collaboration for Child Development), which is not on this map. Cited by 24 papers.

0numbers the graph read from it
0cells of the map it votes in
24citing papers in PubMed
0.9field-weighted citation impact, top 25% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06562439 nawithdrawnnot on this mapstarted 2025, after this paper: background citation

Early Identification and Intervention Of Developmental Delay Among Infants And Toddlers With Sickle Cell Disease Using the Sickle Cell Caregiver Collaboration for Child Development (SCCCD) Intervention

TypeinterventionalSponsorWashington University School of MedicineRan2025 to 2028Enrolled0ConditionsSickle Cell DiseaseArmsSickle Cell Collaboration for Child Development
3 · Its place in the literature

Who cites it

24 citing papers in PubMed, 34 citations in OpenAlex.

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  14. Educational Needs of School Nurses Regarding the Evidence-Based Management of Sickle Cell Disease.International journal of environmental research and public health · 2021
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  19. Differences in Sensory Pain, Expectation, and Satisfaction Reported by Outpatients with Cancer or Sickle Cell Disease.Pain management nursing : official journal of the American Society of Pain Management Nurses · 2018
    Article
  20. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

6 authors at 1 institution in 1 country.

Lauren N WhitemanFrom the Departments of Medicine and Pediatrics, and the Berman Institute of Bioethics, Johns Hopkins University, Baltimore, Maryland.
Carlton HaywoodFrom the Departments of Medicine and Pediatrics, and the Berman Institute of Bioethics, Johns Hopkins University, Baltimore, Maryland.
Sophie LanzkronFrom the Departments of Medicine and Pediatrics, and the Berman Institute of Bioethics, Johns Hopkins University, Baltimore, Maryland.
John J StrouseFrom the Departments of Medicine and Pediatrics, and the Berman Institute of Bioethics, Johns Hopkins University, Baltimore, Maryland.
Leonard FeldmanFrom the Departments of Medicine and Pediatrics, and the Berman Institute of Bioethics, Johns Hopkins University, Baltimore, Maryland.
Rosalyn W StewartFrom the Departments of Medicine and Pediatrics, and the Berman Institute of Bioethics, Johns Hopkins University, Baltimore, Maryland.
Johns Hopkins Berman Institute of Bioethics · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveThe purpose of this study was to determine the comfort levels of primary care providers in caring for individuals with sickle cell disease (SCD) and determine factors that improved or lessened provider comfort.

methodsWe surveyed providers at the annual Johns Hopkins Community Physicians retreat. The survey consisted of 19 questions and measured comfort levels in four domains: providing ambulatory care to individuals with SCD, managing SCD comorbidities, managing SCD-specific issues, and managing chronic pain. We conducted bivariate analyses to identify any demographic or practice characteristics associated with comfort levels. Multivariable analyses were conducted to identify independent correlates of physician comfort.

resultsThe majority of respondents lacked confidence with each of the four aspects of caring for individuals with SCD. Having treated patients with SCD and using knowledge from residency were both independently associated with increased confidence when providing ambulatory care and managing SCD-specific issues in multivariable analyses.

conclusionsThe delivery of high-quality care to adults with SCD in primary care may be limited because of a lack of provider comfort in providing that care. Because provider reliance on knowledge gained from residency significantly affected the management of patients with SCD, it is essential that continuing medical education on SCD is readily available to ensure that providers are using current information and knowledge. In addition, as comfort increases with the number of patients with SCD in a provider's panel, it may be beneficial to identify a subset of primary care providers interested in SCD and refer patients to those providers.

Indexed as

Attitude of Health PersonnelClinical CompetenceHealth Knowledge, Attitudes, PracticePhysicians, Primary CareAdultAmbulatory CareAnemia, Sickle CellComorbidityFemaleHumansMaleMiddle AgedMultivariate AnalysisPain ManagementPhysician-Patient Relations

Identifiers

PMID26332477
OpenAlexW2202871475

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.