Evidence map›Paper›PMID 26324811›Full record

ReviewEuropean respiratory review : an official journal of the European Respiratory Society2015

Informal caregivers of patients with COPD: Home Sweet Home?

Nienke Nakken, Daisy J A Janssen, Esther H A van den Bogaart, Emiel F M Wouters, Frits M E Franssen, Jan H Vercoulen, Martijn A Spruit

Registry-linked trialAbstract readReview
PubMed Full text at PMC Publisher
In one paragraph

Review in European respiratory review : an official journal of the European Respiratory Society, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06046547 (Integrating Palliative Care Education in Pulmonary Rehabilitation), which is not on this map. Cited by 53 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
53citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06046547 naunknown statusnot on this mapstarted 2023, after this paper: background citation

Integrating Palliative Care Education in Pulmonary Rehabilitation

TypeinterventionalSponsorAveiro UniversityRan2023 to 2026Enrolled58ConditionsChronic Obstructive Pulmonary Disease, Interstitial Lung DiseaseArmsPulmonary rehabilitation integrating education about palliative care, Pulmonary rehabilitation
3 · Its place in the literature

Who cites it

53 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Involvement of informal caregivers in supporting patients with COPD: a review of intervention studies.International journal of chronic obstructive pulmonary disease · 2016
    Pooled it
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  8. Review
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  12. Article
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  17. Chronic Obstructive Pulmonary Disease: Lifestyle Impact.International journal of preventive medicine · 2024
    Review
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  19. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Nienke NakkenDept of Research and Education, CIRO, Horn, The Netherlands nienkenakken@ciro-horn.nl.
Daisy J A JanssenDept of Research and Education, CIRO, Horn, The Netherlands Centre of Expertise for Palliative Care, Maastricht University Medical Centre+ (MUMC+), Maastricht, The Netherlands.
Esther H A van den BogaartDept of Research and Education, CIRO, Horn, The Netherlands.
Emiel F M WoutersDept of Research and Education, CIRO, Horn, The Netherlands Dept of Respiratory Medicine, Maastricht University Medical Centre+ (MUMC+), Maastricht, The Netherlands.
Frits M E FranssenDept of Research and Education, CIRO, Horn, The Netherlands.
Jan H VercoulenDept of Medical Psychology and Dept of Pulmonary Diseases, Radboud University Nijmegen Medical Centre, Nijmegen, The Netherlands.
Martijn A SpruitDept of Research and Education, CIRO, Horn, The Netherlands REVAL - Rehabilitation Research Center, BIOMED - Biomedical Research Institute, Faculty of Medicine and Life Sciences, Hasselt University, Diepenbeek, Belgium.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The burden of chronic obstructive pulmonary disease (COPD) on society is increasing. Healthcare systems should support patients with COPD in achieving an optimal quality of life, while limiting the costs of care. As a consequence, a shift from hospital care to home care seems inevitable. Therefore, patients will have to rely to a greater extent on informal caregivers. Patients with COPD as well as their informal caregivers are confronted with multiple limitations in activities of daily living. The presence of an informal caregiver is important to provide practical help and emotional support. However, caregivers can be overprotective, which can make patients more dependent. Informal caregiving may lead to symptoms of anxiety, depression, social isolation and a changed relationship with the patient. The caregivers' subjective burden is a major determinant of the impact of caregiving. Therefore, the caregiver's perception of the patient's health is an important factor. This article reviews the current knowledge about these informal caregivers of patients with COPD, the impact of COPD on their lives and their perception of the patient's health status.

Indexed as

Cost of IllnessHome Care ServicesActivities of Daily LivingAdaptation, PsychologicalCaregiversHealth Knowledge, Attitudes, PracticeHumansInterpersonal RelationsPerceptionPulmonary Disease, Chronic ObstructiveQuality of Life

Identifiers

PMID26324811
PMCPMC9487697

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.