ReviewJournal of general internal medicine2016
Family Caregivers and Consumer Health Information Technology.
Review in Journal of general internal medicine, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 42 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
42 citing papers in PubMed, 76 citations in OpenAlex.
- Digital Health Engagement Behaviors in US Family Caregivers: Trend Analysis Using the Health Information National Trends Survey 2019-2022 Data.Journal of medical Internet research · 2026Article
- A digital biomarker dataset from hematopoietic cell transplant caregivers and patients.Scientific data · 2026Article
- Patient-Centered Care in Orthopedic Education: Bridging Gaps for Holistic Outcomes.Journal of orthopaedic case reports · 2026Article
- Barriers and Enablers of Electronic Health Literacy in Colorectal Cancer Patients: A Phenomenological Study.Patient preference and adherence · 2026Article
- Mobile Telehealth Intervention to Support Care Partners of Patients With Alzheimer Disease and Related Dementias (I-CARE 2): Protocol for a Randomized Effectiveness Clinical Trial.JMIR research protocols · 2025Article
- The Prevalence and Predictors of Digital Proxy Behavior in the United States: Cross-Sectional Survey Study.Journal of medical Internet research · 2025Article
- Users' perspectives on a demonstration to increase shared access to older adults' patient portals.BMC health services research · 2025Article
- Experiences of Older Mental Health Patients and Their Care Partners Using a Proxy Account to Access Open Notes: Qualitative Interview Study.JMIR aging · 2025Article
- [Digital information materials on dementia-an exploratory content analysis].Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz · 2024Article
- Capturing Home Care Information Management and Communication Processes Among Caregivers of Older Adults: Qualitative Study to Inform Technology Design.JMIR formative research · 2024Article
- Design of a Dyadic Digital Health Module for Chronic Disease Shared Care: Development Study.JMIR human factors · 2023Article
- Use of the patient portal among older adults with diagnosed dementia and their care partners.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2023Observational
- Co-Designing an Initiative to Increase Shared Access to Older Adults' Patient Portals: Stakeholder Engagement.Journal of medical Internet research · 2023Article
- ChatGPT vs Google for Queries Related to Dementia and Other Cognitive Decline: Comparison of Results.Journal of medical Internet research · 2023Article
- Patient Portals to Support Care Partner Engagement in Adolescent and Adult Populations: A Scoping Review.JAMA network open · 2022Article
- Utilization of EHR to Improve Support Person Engagement in Health Care for Patients With Chronic Conditions.Journal of patient experience · 2022Article
- Clinical, Organizational and Regulatory, and Ethical and Social (CORES) Issues and Recommendations on Blockchain Deployment for Healthcare: Evidence from Experts.Blockchain in healthcare today · 2022Article
- SHARING Choices: A Pilot Study to Engage Family in Advance Care Planning of Older Adults With and Without Cognitive Impairment in the Primary Care Context.The American journal of hospice & palliative care · 2021Article
- Article
- Family Caregiver Access of Online Medical Records: Findings from the Health Information National Trends Survey.Journal of general internal medicine · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 3 institutions in 1 country.
Funding
Abstract
Health information technology has been embraced as a strategy to facilitate patients' access to their health information and engagement in care. However, not all patients are able to access, or are capable of using, a computer or mobile device. Although family caregivers assist individuals with some of the most challenging and costly health needs, their role in health information technology is largely undefined and poorly understood. This perspective discusses challenges and opportunities of engaging family caregivers through the use of consumer-oriented health information technology. We compile existing evidence to make the case that involving family caregivers in health information technology as desired by patients is technically feasible and consistent with the principles of patient-centered and family-centered care. We discuss how more explicit and purposeful engagement of family caregivers in health information technology could advance clinical quality and patient safety by increasing the transparency, accuracy, and comprehensiveness of patient health information across settings of care. Finally, we describe how clarifying and executing patients' desires to involve family members or friends through health information technology would provide family caregivers greater legitimacy, convenience, and timeliness in health system interactions, and facilitate stronger partnerships between patients, family caregivers, and health care professionals.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.