Evidence map›Paper›PMID 26300297›Full record

ArticleAIDS care2015

Understanding HIV-infected patients' experiences with PEPFAR-associated transitions at a Centre of Excellence in KwaZulu Natal, South Africa: a qualitative study.

Ingrid T Katz, Laura M Bogart, Christie Cloete, Tamaryn L Crankshaw, Janet Giddy, Tessa Govender, Melanie R Gaynes, Dominick Leone, Elena Losina, Ingrid V Bassett

Abstract read
In one paragraph

Article in AIDS care, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
23citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

23 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Review
  4. Article
  5. Article
  6. Evaluation of the impact of PEPFAR transition on retention in care in South Africa's Western Cape Province.South African medical journal = Suid-Afrikaanse tydskrif vir geneeskunde · 2023
    Article
  7. Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. Article
  13. Article
  14. Article
  15. Article
  16. Article
  17. Article
  18. Article
  19. Article
  20. Observational
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Ingrid T Katza Department of Medicine , Brigham and Women's Hospital , Boston , MA , USA.
Laura M Bogartc Harvard Medical School , Boston , MA , USA.
Christie Cloetef McCord Hospital , Durban , South Africa.
Tamaryn L Crankshawg Health Economics and HIV and AIDS Research Division (HEARD) , University of KwaZulu-Natal , KwaZulu-Natal , South Africa.
Janet Giddyf McCord Hospital , Durban , South Africa.
Tessa Govenderf McCord Hospital , Durban , South Africa.
Melanie R Gaynesh Division of General Medicine , Massachusetts General Hospital , Boston , MA , USA.
Dominick Leonea Department of Medicine , Brigham and Women's Hospital , Boston , MA , USA.
Elena Losinae Harvard University Center for AIDS Research (CFAR) , Boston , MA , USA.
Ingrid V Bassette Harvard University Center for AIDS Research (CFAR) , Boston , MA , USA.

Funding

The impact of HIV viral diversity and cellular immunity on HIV pathogenesisP30AI060354 · NIAID · HARVARD UNIVERSITY (MEDICAL SCHOOL) · PI ROBERT A. PARKER · 2004 to 2026
$94.4M
Linkage & Retention: A Randomized Trial to Optimize HIV/TB Care in South AfricaR01MH090326 · NIMH · MASSACHUSETTS GENERAL HOSPITAL · PI BASSETT, INGRID VALERIE · 2010 to 2014
$2.9M
HIV Treatment Refusal Among Adults Presenting for Testing in Soweto, South AfricaK23MH097667 · NIMH · BRIGHAM AND WOMEN'S HOSPITAL · PI KATZ, INGRID T. · 2012 to 2016
$922k
NIAID NIH HHS P30 AI060354NIMH NIH HHS K23 MH097667NIMH NIH HHS R01 MH090326NIMH NIH HHS R01 MH090326-04S1
6 · The paper itself

Abstract

South Africa was the largest recipient of funding from the President's Emergency Plan for AIDS Relief (PEPFAR) for antiretroviral therapy (ART) programs from 2004 to 2012. Funding decreases have led to transfers from hospital and non-governmental organization-based care to government-funded, community-based clinics. We conducted semi-structured interviews with 36 participants to assess patient experiences related to transfer of care from a PEPFAR-funded, hospital-based clinic in Durban to either primary care clinics or hospital-based clinics. Participant narratives revealed the importance of connectedness between patients and the PEPFAR-funded clinic program staff, who were described as respectful and conscientious. Participants reported that transfer clinics were largely focused on dispensing medication and on throughput, rather than holistic care. Although participants appreciated the free treatment at transfer sites, they expressed frustration with long waiting times and low perceived quality of patient-provider communication, and felt that they were treated disrespectfully. These factors eroded confidence in the quality of the care. The transfer was described by participants as hurried with an apparent lack of preparation at transfer clinics for new patient influx. Formal (e.g., counseling) and informal (e.g., family) social supports, both within and beyond the PEPFAR-funded clinic, provided a buffer to challenges faced during and after the transition in care. These data support the importance of social support, adequate preparation for transfer, and improving the quality of care in receiving clinics, in order to optimize retention in care and long-term adherence to treatment.

Indexed as

Antiretroviral Therapy, Highly ActivePatient SatisfactionSocial SupportAdultFemaleHIV InfectionsHumansInterviews as TopicMalePatient TransferPublic-Private Sector PartnershipsSouth AfricaARTdecentralizationHIVPEPFARSouth Africatransitions in care

Identifiers

PMID26300297
PMCPMC4548805

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.