Evidence map›Paper›PMID 26299555›Full record

ArticleThe Journal of adolescent health : official publication of the Society for Adolescent Medicine2015

Development and Validation of the Adolescent Assessment of Preparation for Transition: A Novel Patient Experience Measure.

Gregory S Sawicki, Katharine C Garvey, Sara L Toomey, Kathryn A Williams, Yuefan Chen, J Lee Hargraves, Jessica Leblanc, Mark A Schuster, Jonathan A Finkelstein

Open access · greenAbstract readValidation Study
In one paragraph

Article in The Journal of adolescent health : official publication of the Society for Adolescent Medicine, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
24citing papers in PubMed, 3 pooled it
10.0field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

24 citing papers in PubMed, 3 syntheses or guidelines pooled it, 45 citations in OpenAlex.

  1. Pooled it
  2. Pooled it
  3. Pooled it
  4. Trial
  5. Article
  6. Factors Associated with Adolescents' Self-Efficacy to Meet with their Health Care Provider Alone.Health education & behavior : the official publication of the Society for Public Health Education · 2026
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  18. Patient-reported experience measure in sickle cell disease.Archives of disease in childhood · 2018
    Article
  19. Pediatric rheumatology: addressing the transition to adult-orientated health care.Open access rheumatology : research and reviews · 2018
    Review
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 3 institutions in 1 country.

Gregory S SawickiDivision of General Pediatrics, Boston Children's Hospital, Boston, Massachusetts; Division of Respiratory Diseases, Boston Children's Hospital, Boston, Massachusetts; Department of Pediatrics, Harvard Medical School, Boston, Massachusetts. Electronic address: gregory.sawicki@childrens.harvard.edu.
Katharine C GarveyDivision of General Pediatrics, Boston Children's Hospital, Boston, Massachusetts; Department of Pediatrics, Harvard Medical School, Boston, Massachusetts; Division of Endocrinology, Boston Children's Hospital, Boston, Massachusetts.
Sara L ToomeyDivision of General Pediatrics, Boston Children's Hospital, Boston, Massachusetts; Department of Pediatrics, Harvard Medical School, Boston, Massachusetts.
Kathryn A WilliamsClinical Research Center, Boston Children's Hospital, Boston, Massachusetts.
Yuefan ChenDivision of General Pediatrics, Boston Children's Hospital, Boston, Massachusetts.
J Lee HargravesCenter for Survey Research, University of Massachusetts, Boston, Massachusetts.
Jessica LeblancCenter for Survey Research, University of Massachusetts, Boston, Massachusetts.
Mark A SchusterDivision of General Pediatrics, Boston Children's Hospital, Boston, Massachusetts; Department of Pediatrics, Harvard Medical School, Boston, Massachusetts.
Jonathan A FinkelsteinDivision of General Pediatrics, Boston Children's Hospital, Boston, Massachusetts; Department of Pediatrics, Harvard Medical School, Boston, Massachusetts.
Harvard University · USBoston Children's Hospital · USUniversity of Massachusetts Boston · US

Funding

Children's Hospital Boston Center of Excellence for Quality MeasurementU18HS020513 · AHRQ · BOSTON CHILDREN'S HOSPITAL · PI SCHUSTER, MARK A. · 2011 to 2014
$7.9M
Improving Care Utilization and Outcomes in Transitioning Youth with DiabetesK23DK102655 · NIDDK · BOSTON CHILDREN'S HOSPITAL · PI GARVEY, KATHARINE · 2014 to 2017
$733k
Cystic Fibrosis as a Model of Health Care Transition for Chronically Ill YouthK23HL105541 · NHLBI · BOSTON CHILDREN'S HOSPITAL · PI SAWICKI, GREGORY S · 2011 to 2015
$699k
AHRQ HHS U18 HS 020513AHRQ HHS U18 HS020513NHLBI NIH HHS 1K23HL105541-01A1NHLBI NIH HHS K23 HL105541NIDDK NIH HHS K23 DK102655
6 · The paper itself

Abstract

purposeSignificant gaps exist in health care transition (HCT) preparation that can impact care and outcomes in young adults with chronic illness. No quality measure exists to directly assess adolescent experiences of HCT preparation. Our objective was to develop an adolescent-reported measure of the quality of HCT preparation received from pediatric health care providers.

methodsThe Adolescent Assessment of Preparation for Transition (ADAPT) is a 26-item mailed survey designed for completion by 16- and 17-year-old adolescents with a chronic health condition. Adolescents from three samples (two large Medicaid insurance plans [n = 3,000 each] and one large tertiary care pediatric hospital [n = 623]) were mailed the survey. An iterative developmental process included focus groups and cognitive interviews, and validity was assessed using confirmatory factor analysis and ordinal reliability coefficients.

resultsReliability and validity was evaluated for the following three prespecified composite measures: (1) counseling on transition self-management; (2) counseling on prescription medication; and (3) transfer planning. Across the three samples, all but one measure had good internal consistency (ordinal reliability coefficient ≥ .7). Confirmatory factor analysis using tetrachoric correlation coefficients was stable across samples and supported the construct validity of the first two composite measures.

conclusionsADAPT is a reliable, validated instrument measuring the quality of HCT preparation experiences reported by adolescents with chronic disease. ADAPT will enable clinical programs and health care delivery systems to assess the quality of HCT preparation and provide targets for improvement in adolescent counseling related to transition.

Indexed as

Quality of Health CareTransition to Adult CareAdolescentAdolescent Health ServicesChronic DiseaseDirective CounselingHealth Care SurveysHumansMedication AdherenceSelf CareSelf ReportHealth care transitionPatient experienceQuality measurementSurvey development

Identifiers

PMID26299555
PMCPMC4548278
OpenAlexW1950996188

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.