ArticleJournal of empirical research on human research ethics : JERHRE2015
Addressing Global Data Sharing Challenges.
Article in Journal of empirical research on human research ethics : JERHRE, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Best Practices for Ethical Sharing of Individual-Level Health Research Data From Low- and Middle-Income Settings.Journal of empirical research on human research ethics : JERHRE · 2015Pooled it
- Autism data sharing: Benefits, challenges, and recommendations.PLOS digital health · 2026Review
- Diversity and Representation in Cardiovascular Research: Evidence Gaps, Emerging Models, and Policy Implications.International journal of environmental research and public health · 2026Review
- Mapping Non-Monetary Values in Data Sharing: Development and Validation of an SSH Framework Across Sectors.Open research Europe · 2026Article
- Perspective review: Will generative AI make common data models obsolete in future analyses of distributed data networks?Therapeutic advances in drug safety · 2025Review
- Data as scientific currency: Challenges experienced by researchers with sharing health data in sub-Saharan Africa.PLOS digital health · 2024Article
- Review
- Longitudinal studies of child mental disorders in the general population: A systematic review of study characteristics.JCPP advances · 2023Article
- Exploring HIV/AIDS investigator perceptions of equity within research partnerships between low-and middle-income and high-income countries: a pilot survey.Health research policy and systems · 2023Article
- Towards achieving transnational research partnership equity: lessons from implementing adaptive platform trials in low- and middle-income countries.Wellcome open research · 2023Article
- Can we share models if sharing data is not an option?Patterns (New York, N.Y.) · 2022Review
- African researchers do not think differently about Open Data.Frontiers in research metrics and analytics · 2022Article
- (Hyper)active Data Curation: A Video Case Study from Behavioral Science.Journal of escience librarianship · 2021Article
- Issues and Challenges Associated with Data-Sharing in LMICs: Perspectives of Researchers in Thailand.The American journal of tropical medicine and hygiene · 2020Article
- A beginner's guide to data stewardship and data sharing.Spinal cord · 2019Review
- Data sharing in psychology.The American psychologistReview
- Exploring perspectives of research ethics committee members on the governance of big data in sub-Saharan Africa.South African journal of scienceArticle
- Using a Multicountry Learning Network to Harvest and Rapidly Spread Implementation Knowledge across Programs Aimed to Reduce Mother-to-Child Transmission of HIV and Improve Nutrition: Perspectives and Lessons Learned for Similar Large-Scale Initiatives.Journal of the International Association of Providers of AIDS CareArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
This issue of the Journal of Empirical Research on Human Research Ethics highlights the ethical issues that arise when researchers conducting projects in low- and middle-income countries seek to share the data they produce. Although sharing data is considered a best practice, the barriers to doing so are considerable and there is a need for guidance and examples. To that end, the authors of this article reviewed the articles in this special issue to identify challenges common to the five countries and to offer some practical advice to assist researchers in navigating this "uncharted territory," as some termed it. Concerns around informed consent, data management, data dissemination, and validation of research contributions were cited frequently as particularly challenging areas, so the authors focused on these four topics with the goal of providing specific resources to consult as well as examples of successful projects attempting to solve many of the problems raised.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.