ArticleJournal of empirical research on human research ethics : JERHRE2015
Sharing Public Health Research Data: Toward the Development of Ethical Data-Sharing Practice in Low- and Middle-Income Settings.
Article in Journal of empirical research on human research ethics : JERHRE, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
24 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Context of data sharing practices in collaborative human genomic research in low and middle income countries: A systematic review.PloS one · 2026Pooled it
- Barriers impeding research data sharing on chronic disease prevention among the older adults in low-and middle-income countries: a systematic review.Frontiers in public health · 2024Pooled it
- Best Practices for Ethical Sharing of Individual-Level Health Research Data From Low- and Middle-Income Settings.Journal of empirical research on human research ethics : JERHRE · 2015Pooled it
- Identifying the motivators, benefits and barriers to sharing participant-level data and samples: results from an international online survey of acute febrile illness cohort teams.BMC medical ethics · 2026Article
- Ethical considerations for genetic research in low-income countries: perceptions of informed consent, data sharing, and expectations in Nicaragua.European journal of human genetics : EJHG · 2024Article
- Data as scientific currency: Challenges experienced by researchers with sharing health data in sub-Saharan Africa.PLOS digital health · 2024Article
- Trust as moral currency: Perspectives of health researchers in sub-Saharan Africa on strategies to promote equitable data sharing.PLOS digital health · 2024Article
- Ten simple rules for using public biological data for your research.PLoS computational biology · 2023Article
- Data sharing practices in collaborative human genomic research in low- and middle-income countries: A systematic review protocol.PloS one · 2023Article
- Regulatory Frameworks for Clinical Trial Data Sharing: Scoping Review.Journal of medical Internet research · 2022Article
- Article
- Bridging research integrity and global health epidemiology (BRIDGE) guidelines: explanation and elaboration.BMJ global health · 2020Review
- Biomedical Data Sharing Among Researchers: A Study from Jordan.Journal of multidisciplinary healthcare · 2020Article
- It is not enough that we require data to be shared; we have to make sharing easy, feasible and accessible too!BMJ global health · 2019Article
- Advancing good governance in data sharing and biobanking - international aspects.Wellcome open research · 2019Article
- Effect of TB/HIV Integration on TB and HIV Indicators in Rural Ugandan Health Facilities.Journal of acquired immune deficiency syndromes (1999) · 2018Article
- Society and personal genome data.Human molecular genetics · 2018Review
- Psychiatric Genomics: Ethical Implications for Public Health in Lower- and Middle-Income Countries.The American journal of bioethics : AJOB · 2017Article
- Genetics in the 21st Century: Implications for patients, consumers and citizens.F1000Research · 2017Article
- Views of Ethical Best Practices in Sharing Individual-Level Data From Medical and Public Health Research: A Systematic Scoping Review.Journal of empirical research on human research ethics : JERHRE · 2015Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
Abstract
It is increasingly recognized that effective and appropriate data sharing requires the development of models of good data-sharing practice capable of taking seriously both the potential benefits to be gained and the importance of ensuring that the rights and interests of participants are respected and that risk of harms is minimized. Calls for the greater sharing of individual-level data from biomedical and public health research are receiving support among researchers and research funders. Despite its potential importance, data sharing presents important ethical, social, and institutional challenges in low-income settings. In this article, we report on qualitative research conducted in five low- and middle-income countries exploring the experiences of key research stakeholders and their views about what constitutes good data-sharing practice.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.