ArticleYearbook of medical informatics2015
Ethical Issues of Social Media Usage in Healthcare.
Article in Yearbook of medical informatics, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 63 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
63 citing papers in PubMed.
- Assessing Efgartigimod (VYVGART™) Social Media Posts in Generalized Myasthenia Gravis to Understand Patient, Caregiver, and Health Care Professional Sentiments.Neurology and therapy · 2026Article
- Social media use for healthcare professionals in South Africa: The do's and don'ts.South African family practice : official journal of the South African Academy of Family Practice/Primary Care · 2026Article
- Social media landscape: a cross-sectional survey of health professionals.Rheumatology international · 2025Article
- Reporting of Ethical Considerations in Qualitative Research Utilizing Social Media Data on Public Health Care: Scoping Review.Journal of medical Internet research · 2024Article
- Toward Fairness, Accountability, Transparency, and Ethics in AI for Social Media and Health Care: Scoping Review.JMIR medical informatics · 2024Article
- Testing Behavioral Messages to Increase Recruitment to Health Research When Embedded Within Social Media Campaigns on Twitter: Web-Based Experimental Study.JMIR formative research · 2024Article
- Leveraging patient experience data to guide medicines development, regulation, access decisions and clinical care in the EU.Frontiers in medicine · 2024Review
- The impact of a dedicated social media strategy on enhancing surgical education.Langenbeck's archives of surgery · 2023Article
- Ethical and Information Governance Considerations for Promoting Digital Social Interventions in Primary Care.Journal of medical Internet research · 2023Article
- Defining and Scoping Participatory Health Informatics: An eDelphi Study.Methods of information in medicine · 2023Article
- How Participatory Health Informatics Catalyzes One Digital Health.Yearbook of medical informatics · 2023Article
- Exploring the Evolution of Social Media in Mental Health Interventions: A Mapping Review.Yearbook of medical informatics · 2023Review
- Social Media Use Among Members of the Assessment of Spondyloarthritis International Society: Results of a Web-Based Survey.Journal of medical Internet research · 2023Article
- Online Health (Mis)Information: The Role of Medical Students.Healthcare (Basel, Switzerland) · 2022Article
- Evaluating novel methods of outcome assessment following cardiac arrest.Resuscitation · 2022Article
- Online Ethnography for People With Chronic Conditions: Scoping Review.Journal of medical Internet research · 2022Article
- Searching for a cure on Facebook: Patterns of social media use amongst caregivers of children with brain tumors.Cancer medicine · 2022Article
- Article
- Ethical Issues in Social Media Recruitment for Clinical Studies: Ethical Analysis and Framework.Journal of medical Internet research · 2022Review
- Patient-Generated Health Photos and Videos Across Health and Well-being Contexts: Scoping Review.Journal of medical Internet research · 2022Article
3 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveSocial media, web and mobile technologies are increasingly used in healthcare and directly support patientcentered care. Patients benefit from disease self-management tools, contact to others, and closer monitoring. Researchers study drug efficiency, or recruit patients for clinical studies via these technologies. However, low communication barriers in socialmedia, limited privacy and security issues lead to problems from an ethical perspective. This paper summarizes the ethical issues to be considered when social media is exploited in healthcare contexts.
methodsStarting from our experiences in social-media research, we collected ethical issues for selected social-media use cases in the context of patient-centered care. Results were enriched by collecting and analyzing relevant literature and were discussed and interpreted by members of the IMIA Social Media Working Group.
resultsMost relevant issues in social-media applications are confidence and privacy that need to be carefully preserved. The patient-physician relationship can suffer from the new information gain on both sides since private information of both healthcare provider and consumer may be accessible through the Internet. Physicians need to ensure they keep the borders between private and professional intact. Beyond, preserving patient anonymity when citing Internet content is crucial for research studies.
conclusionExploiting medical social-media in healthcare applications requires a careful reflection of roles and responsibilities. Availability of data and information can be useful in many settings, but the abuse of data needs to be prevented. Preserving privacy and confidentiality of online users is a main issue, as well as providing means for patients or Internet users to express concerns on data usage.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.