ArticleBMC palliative care2015
Design of, and enrollment in, the palliative care communication research initiative: a direct-observation cohort study.
Article in BMC palliative care, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
11 citing papers in PubMed.
- Assessing the Acceptability and Feasibility of Leveraging Emergency Department Social Workers' Advanced Communication Skills to Assess Elderly Patients' Goals and Values.Journal of palliative medicine · 2023Trial
- Conducting a randomized controlled clinical trial on palliative care in patients with glioblastoma - what are the challenges?Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Hysteresis Curves: Scalable Measures of Lagged Conversation Events for Communication Science.Journal of pain and symptom management · 2026Article
- Somtimes: self organizing maps for time series clustering and its application to serious illness conversations.Data mining and knowledge discovery · 2024Article
- A Formative Mixed-Methods Study of Emotional Responsiveness in Telepalliative Care.Journal of palliative medicine · 2022Article
- "If it's the time, it's the time": Existential communication in naturally-occurring palliative care conversations with individuals with advanced cancer, their families, and clinicians.Patient education and counseling · 2021Article
- "I Had a Lot More Planned": The Existential Dimensions of Prognosis Communication with Adults with Advanced Cancer.Journal of palliative medicine · 2021Article
- Using natural language processing to explore heterogeneity in moral terminology in palliative care consultations.BMC palliative care · 2021Article
- A general model of conversational dynamics and an example application in serious illness communication.PloS one · 2021Observational
- Tumor Talk and Child Well-Being: Perceptions of "Good" and "Bad" News Among Parents of Children With Advanced Cancer.Journal of pain and symptom management · 2017Article
- Article
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Authors and funding
16 authors.
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No grant is acknowledged in the PubMed record.
Abstract
backgroundUnderstanding the characteristics of communication that foster patient-centered outcomes amid serious illness are essential for the science of palliative care. However, epidemiological cohort studies that directly observe clinical conversations can be challenging to conduct in the natural setting. We describe the successful enrollment, observation and data collection methods of the ongoing Palliative Care Communication Research Initiative (PCCRI).
methodsThe PCCRI is a multi-site cohort study of naturally occurring inpatient palliative care consultations. The 6-month cohort data includes directly observed and audio-recorded palliative care consultations (up to first 3 visits); patient/proxy/clinician self-report questionnaires both before and the day after consultation; post-consultation in-depth interviews; and medical/administrative records.
resultsOne hundred fourteen patients or their proxies enrolled in PCCRI during Enrollment Year One (of Three). Seventy percent of eligible patients/proxies were invited to hear about a communication research study (188/269); 60% of them ultimately enrolled in the PCCRI (114/188), resulting in a 42% sampling proportion (114/269 eligible). All PC clinicians at study sites were invited to participate; all 45 participated.
conclusionsEpidemiologic study of patient-family-clinician communication in palliative care settings is feasible and acceptable to patients, proxies and clinicians. We detail the successful PCCRI methods for enrollment, direct observation and data collection for this complex "field" environment.
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