ArticlePalliative medicine2016
A multimethod analysis of shared decision-making in hospice interdisciplinary team meetings including family caregivers.
Article in Palliative medicine, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
19 citing papers in PubMed.
- Hospice Family Caregiver Involvement in Care Plan Meetings: A Mixed-Methods Randomized Controlled Trial.The American journal of hospice & palliative care · 2017Trial
- Factors influencing engagement in an online support group for family caregivers of individuals with advanced cancer.Journal of psychosocial oncologyTrial
- Optimizing hospice care: A scoping review of staffing strategies to enhance practice.International journal of nursing studies advances · 2026Review
- Barriers and Facilitators of Family Meetings in Primary Palliative Care: Insights From Slovenia.Zdravstveno varstvo · 2025Article
- An Integrative Review of Interprofessional Teamwork and Required Competence in Specialized Palliative Care.Omega · 2024Review
- A Goal-Directed Model of Collaborative Decision Making in Hospice and Palliative Care.Journal of palliative care · 2022Article
- Mixed methods analysis of hospice staff perceptions and shared decision making practices in hospice.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Building a telepalliative care strategy in nursing homes: a qualitative study with mobile palliative care teams.BMC palliative care · 2021Article
- Comparison of Traditional Videos With Telenovelas for Hospice Family Caregivers Education.The American journal of hospice & palliative care · 2021Article
- The Challenge of Cancer Pain Assessment.The Ulster medical journal · 2021Article
- Caregivers' role in using a personal electronic health record: a qualitative study of cancer patients and caregivers in Germany.BMC medical informatics and decision making · 2020Article
- Validity of the French version of the Autonomy Preference Index and its adaptation for patients with advanced cancer.PloS one · 2020Article
- Behind the doors of home hospice patients: A secondary qualitative analysis of hospice nurse communication with patients and families.Palliative & supportive care · 2019Article
- Oncologists' Perceptions of a Digital Tool to Improve Cancer Survivors' Cardiovascular Health.ACI open · 2019Article
- Trends in descriptions of palliative care in the cancer clinical practice guidelines before and after enactment of the Cancer Control Act (2007): content analysis.BMC palliative care · 2019Article
- Shared Decision Making in Home Hospice Nursing Visits: A Qualitative Study.Journal of pain and symptom management · 2018Article
- Communication among cancer patients, caregivers, and hospice nurses: Content, process and change over time.Patient education and counseling · 2018Observational
- WE'RE THE EYES AND THE EARS, BUT WE DON'T HAVE A VOICE: PERSPECTIVES OF HOSPICE AIDES.Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association · 2018Article
- The Benefit of a Multidisciplinary Approach to the Patient Treated with (Chemo) Radiation for Head and Neck Cancer.Current treatment options in oncology · 2016Review
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
backgroundMuch of the existing research on shared decision-making in hospice and palliative care focuses on the provider-patient dyad; little is known about shared decision-making that is inclusive of family members of patients with advanced disease.
aimWe sought to describe shared decision-making as it occurred in hospice interdisciplinary team meetings that included family caregivers as participants using video-conferencing technology.
designWe conducted a multimethod study in which we used content and thematic analysis techniques to analyze video-recordings of hospice interdisciplinary team meetings (n = 100), individual interviews of family caregivers (n = 73) and hospice staff members (n = 78), and research field notes. SETTING/
participantsParticipants in the original studies from which data for this analysis were drawn were hospice family caregivers and staff members employed by one of five different community-based hospice agencies located in the Midwestern United States.
resultsShared decision-making occurred infrequently in hospice interdisciplinary team meetings that included family caregivers. Barriers to shared decision-making included time constraints, communication skill deficits, unaddressed emotional needs, staff absences, and unclear role expectations. The hospice philosophy of care, current trends in healthcare delivery, the interdisciplinary nature of hospice teams, and the designation of a team leader/facilitator supported shared decision-making.
conclusionThe involvement of family caregivers in hospice interdisciplinary team meetings using video-conferencing technology creates a useful platform for shared decision-making; however, steps must be taken to transform family caregivers from meeting attendees to shared decision-makers.
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