ArticleJournal of the American Medical Informatics Association : JAMIA2016
Design and feasibility of integrating personalized PRO dashboards into prostate cancer care.
Article in Journal of the American Medical Informatics Association : JAMIA, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 40 papers, 4 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
40 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Meaningful consumer involvement in cancer care: a systematic review on co-design methods and processes.JNCI cancer spectrum · 2024Pooled it
- How technology impacts communication between cancer patients and their health care providers: A systematic literature review.International journal of medical informatics · 2021Pooled it
- Converging and diverging needs between patients and providers who are collecting and using patient-generated health data: an integrative review.Journal of the American Medical Informatics Association : JAMIA · 2018Pooled it
- Patient-reported outcome use in oncology: a systematic review of the impact on patient-clinician communication.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2018Pooled it
- Access to results of patient reported outcome surveys did not improve longitudinal patient reported outcomes in breast cancer patients in a randomized controlled trial.American journal of surgery · 2025Trial
- From participatory design to clinical routine: new concepts for visualizing patient-reported outcomes in breast cancer care.Journal of patient-reported outcomes · 2026Article
- Clinical and economic impact of digital dashboards on hospital inpatient care: a systematic review.JAMIA open · 2025Review
- Developing, Piloting and Evaluating a Patient Support Portal for Men With Prostate Cancer in Victoria: An Action Research Study.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Implementation of patient-reported outcome dashboards within the electronic health record to support shared decision-making in serious chronic illness.BMJ open quality · 2025Article
- Building Patient-Facing Technology: A REDCap-Based Approach.AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science · 2025Article
- Facilitators and barriers to implementing patient-reported outcomes in clinical oncology practice: a systematic review based on the consolidated framework for implementation research.Implementation science communications · 2024Review
- A Collection of Components to Design Clinical Dashboards Incorporating Patient-Reported Outcome Measures: Qualitative Study.Journal of medical Internet research · 2024Article
- Evaluating and improving the usability of a mHealth platform to assess postoperative dental pain.JAMIA open · 2024Article
- It's About the Journey - Capturing Stories of the Fluctuating Experiences of Youth Kidney Transplant Patients.Proceedings of the ACM on human-computer interaction · 2024Article
- Treatment-Related Cognitive Impairment in Patients with Prostate Cancer: Patients' Real-World Insights for Optimizing Outcomes.Advances in therapy · 2024Review
- Measuring design thinking competence in Taiwanese nursing students: a cross-cultural instrument adaptation.BMC medical education · 2023Article
- Ageism in the Discourse and Practice of Designing Digital Technology for Older Persons: A Scoping Review.The Gerontologist · 2023Article
- Development of a risk-tailored approach and dashboard for efficient management and monitoring of investigator-initiated trials.BMC medical research methodology · 2023Review
- Graphical user interface design to improve understanding of the patient-reported outcome symptom response.PloS one · 2023Article
- Meeting the information and communication needs of health disparate populations.Journal of the American Medical Informatics Association : JAMIA · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
objectivePatient-reported outcomes (PROs) are a valued source of health information, but prior work focuses largely on data capture without guidance on visual displays that promote effective PRO use in patient-centered care. We engaged patients, providers, and design experts in human-centered design of "PRO dashboards" that illustrate trends in health-related quality of life (HRQOL) reported by patients following prostate cancer treatment. MATERIALS AND
methodsWe designed and assessed the feasibility of integrating dashboards into care in 3 steps: (1) capture PRO needs of patients and providers through focus groups and interviews; (2) iteratively build and refine a prototype dashboard; and (3) pilot test dashboards with patients and their provider during follow-up care.
resultsFocus groups (n = 60 patients) prioritized needs for dashboards that compared longitudinal trends in patients' HRQOL with "men like me." Of the candidate dashboard designs, 50 patients and 50 providers rated pictographs less helpful than bar charts, line graphs, or tables (P < .001) and preferred bar charts and line graphs most. Given these needs and the design recommendations from our Patient Advisory Board (n = 7) and design experts (n = 7), we built and refined a prototype that charts patients' HRQOL compared with age- and treatment-matched patients in personalized dashboards. Pilot testing dashboard use (n = 12 patients) improved compliance with quality indicators for prostate cancer care (P < .01).
conclusionPRO dashboards are a promising approach for integrating patient-generated data into prostate cancer care. Informed by human-centered design principles, this work establishes guidance on dashboard content, tailoring, and clinical use that patients and providers find meaningful.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.