ArticleClinical kidney journal2015
End-stage kidney disease patient evaluation of the Australian 'My Kidneys, My Choice' decision aid.
Article in Clinical kidney journal, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 4 of them syntheses that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
16 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Do patient decision aids help people who are facing decisions about solid organ transplantation? A systematic review.Clinical transplantation · 2023Pooled it
- Pooled it
- Factors promoting shared decision-making in renal replacement therapy for patients with end-stage kidney disease: systematic review and qualitative meta-synthesis.International urology and nephrology · 2022Pooled it
- Kidney disease pathways, options and decisions: an environmental scan of international patient decision aids.Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association · 2020Pooled it
- Use of a Supportive Kidney Care Video Decision Aid in Older Patients: A Randomized Controlled Trial.American journal of nephrology · 2020Trial
- Shared decision-making for kidney replacement therapy: a comprehensive review and a proposed model.The Korean journal of internal medicine · 2025Review
- Decision aids to assist patients and professionals in choosing the right treatment for kidney failure.Clinical kidney journal · 2023Review
- Article
- Kidney Supportive Care in Peritoneal Dialysis: Developing a Person-Centered Kidney Disease Care Plan.Kidney medicine · 2022Review
- Perspectives on Conservative Care in Advanced Kidney Disease: A Qualitative Study of US Patients and Family Members.American journal of kidney diseases : the official journal of the National Kidney Foundation · 2021Article
- A Patient Decision Aid App for Patients With Chronic Kidney Disease: Questionnaire Study.JMIR formative research · 2019Article
- Article
- Role of telehealth in renal replacement therapy education.Seminars in dialysis · 2018Review
- How does pre-dialysis education need to change? Findings from a qualitative study with staff and patients.BMC nephrology · 2017Article
- Research Priorities for Palliative Care for Older Adults with Advanced Chronic Kidney Disease.Journal of palliative medicine · 2017Article
- Do Dialysis Decision Aids Improve Treatment Decision-Making?Peritoneal dialysis international : journal of the International Society for Peritoneal DialysisArticle
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundA multidisciplinary team in Australia and New Zealand utilized a current decision-making theory to develop the 'My Kidneys, My Choice' decision aid (MKDA) to support end-stage kidney disease (ESKD) treatment options in decision-making. Assessment of the MKDA was deemed critical to practice integration.
methodsA multisite pre-test, post-test study design was used. Routine ESKD education was supported by the MKDA. Knowledge levels, worries and priorities were assessed pre- and post-education with Likert-scale questions. MKDA usability and treatment option preferences were surveyed post-test. Data were analysed in SPSS.
resultsNinety-seven participants completed the pre-survey and 72 (70%) the post-survey. Mean pre-test knowledge scores ranged from: 0.88 (SD 1.5) for conservative care to 1.32 (SD 1.3) for centre-based dialysis. Post-decision-making knowledge levels increased significantly (P < 0.001). Worry and flexibility scores all increased significantly (P < 0.05) from pre- to post-test; about future pre- 4.15 (SD 1.3), post- 4.61 (SD 0.76); change to lifestyle 4.23 (SD 1.05), 4.59 (SD 0.8); ability to work/do leisure activities 3.67 (SD 1.56) 4.27 (SD 1.17) and desire for flexibility 4.51 (SD 0.86), 4.76 (SD 0.66). MKDA usability scores were high: easy to understand 4.64, (SD 0.77), easy to follow 4.65, (SD 0.66) and supporting decision-making 4.76 (SD 0.61). MKDA section scores ranged from 4.21 (SD 0.75) for writing treatment choices to 4.90 (SD 0.41) for the use of the treatment option comparison grid.
conclusionsPreliminary MKDA assessment revealed high patient acceptance and usability. Patients had equitable knowledge of all treatment options but experienced higher post-worries levels than anticipated.
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