SynthesisBMC pediatrics2015
Parent/caregiver health literacy among children with special health care needs: a systematic review of the literature.
Synthesis in BMC pediatrics, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 37 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
37 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Health literacy of primary caregivers of children with cerebral palsy in low- and middle-income countries: a systematic review.BMJ open · 2025Pooled it
- Health literacy in cancer caregivers: a systematic review.Journal of cancer survivorship : research and practice · 2021Pooled it
- Health Literacy and Health Outcomes Among Children With Developmental Disabilities: A Systematic Review.American journal on intellectual and developmental disabilities · 2020Pooled it
- Influence of Maternal Prepregnancy Obesity and Excessive Gestational Weight Gain on Maternal and Child Gastrointestinal Microbiome Composition: A Systematic Review.Biological research for nursing · 2020Pooled it
- Association of Parental Health Literacy with Treatment Adherence and Clinical Outcomes in Adolescents with Allergic Rhinitis: A Controlled Longitudinal Study.Journal of clinical medicine · 2026Article
- Exploration of the relationships between health literacy and experience of care integration in parents of children with special healthcare needs: a cross-sectional study.BMC health services research · 2026Article
- Caregiver-reported experience of integrated care for children with special health care needs and its sociodemographic, health- and network-related correlates in Germany: Cross-sectional results from the PART-CHILD cohort.BMC health services research · 2026Article
- Caregiver Health Literacy and Healthcare Utilization Behaviors: A Prospective Study Comparing Caregivers of Orthopaedic Patients With Chronic Versus Acute Conditions.Journal of the Pediatric Orthopaedic Society of North America · 2026Article
- Defining health and digital health literacy among caregivers in paediatric rehabilitation: a mixed-methods study.BMJ paediatrics open · 2026Article
- The relationship between health literacy and satisfaction with medical care in parents of children with chronic gastrointestinal diseases.Frontiers in public health · 2026Article
- Internet-Based home care education for children with pulmonary hypertension: a public health perspective.Frontiers in pediatrics · 2026Review
- The relationship between stress, anxiety, and health literacy in parents of children with chronic gastroenterological diseases: a multi-center cross-sectional study.BMC public health · 2025Article
- Association between caregiver health literacy and patient characteristics in pediatric new onset diabetes mellitus.Public health · 2025Article
- Navigating a New Normal: A Mixed-Methods Study of the Pediatric Tracheostomy Parent-Caregiver Experience.Children (Basel, Switzerland) · 2025Review
- Caregiver health literacy, sleep practices, and child sleep outcomes in Thai children aged 3-12 years: a cross-sectional study.European journal of pediatrics · 2025Article
- Metabolic, Hematological, and Functional Health in Adults with Down Syndrome and Significance of Parental Health Literacy: A Cross-Sectional Study.Healthcare (Basel, Switzerland) · 2025Article
- Differences in HPV Vaccine Information Usefulness and Understanding Between Parents With and Without a Child with Special Healthcare Needs.Maternal and child health journal · 2025Article
- Development and psychometric validation of a novel health literacy scale for family caregivers of preschool children.Health and quality of life outcomes · 2025Article
- Health Literacy and Self-Efficacy in Parents of Toddlers-A Cross-Sectional Study.Nursing open · 2025Article
- Efficacy of Health Literacy Interventions for Caregivers of Individuals with Neurodevelopmental and Chronic Conditions: A Rapid Review.Children (Basel, Switzerland) · 2024Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundChildren with special health care needs (CSHCN) are children with medical or behavioral diagnoses that require services beyond those generally needed by pediatric populations. They account for a significant portion of pediatric health care expenditures and often have complicated treatment regiments. Health literacy has recently been recognized as a key indicator of quality chronic disease self-management and parental/caregiver health literacy of CSHCN is an understudied area. The purpose of this systematic review was to assess the available evidence of studies investigating parent/caregiver health literacy of CSHCN.
methodsDatabases were searched to retrieve relevant articles for inclusion (dating from 1998 to 2014). Only studies that assessed the relationship between parent/caregiver health literacy on outcomes pertinent to CSHCN were included. Because of the limited number of studies, there were no restrictions placed on type of outcome.
resultsThirteen studies were included in the final review with a range of health literacy assessments and outcome ascertainment. The majority of studies; (1) focused on the relationship between parental/caregiver health literacy and asthma outcomes, (2) were cross-sectional study designs, and (3) included samples recruited from pediatric clinics in academic medical settings.
conclusionsThere were several gaps in the literature where future research is needed including; (1) direct assessment of child/adolescent health literacy, (2) inclusion of children with co-morbid conditions, (3) further assessment of the relationship between health literacy and health care utilization and cost, and (4) assessment of parental/caregiver health literacy in the inpatient care setting.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.