ArticleJournal of the American Medical Informatics Association : JAMIA2016
A web-based, patient-centered toolkit to engage patients and caregivers in the acute care setting: a preliminary evaluation.
Article in Journal of the American Medical Informatics Association : JAMIA, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 62 papers, 7 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
62 citing papers in PubMed, 7 syntheses or guidelines pooled it.
- How technology impacts communication between cancer patients and their health care providers: A systematic literature review.International journal of medical informatics · 2021Pooled it
- Interventions to promote family member involvement in adult critical care settings: a systematic review.BMJ open · 2021Pooled it
- Quantifying Patient Portal Use: Systematic Review of Utilization Metrics.Journal of medical Internet research · 2021Pooled it
- Using Electronic Health Record Portals to Improve Patient Engagement: Research Priorities and Best Practices.Annals of internal medicine · 2020Pooled it
- What Do Patients and Caregivers Want? A Systematic Review of User Suggestions to Improve Patient Portals.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2020Pooled it
- Interventions to increase patient portal use in vulnerable populations: a systematic review.Journal of the American Medical Informatics Association : JAMIA · 2019Pooled it
- Inpatient Portals for Hospitalized Patients and Caregivers: A Systematic Review.Journal of hospital medicine · 2018Pooled it
- Engaging hospitalized patients in clinical care: Study protocol for a pragmatic randomized controlled trial.Contemporary clinical trials · 2016Trial
- Swaying Information About Care: Information-Sharing Challenges in Transitional Care of Older Adults in Japan.Journal of cross-cultural gerontology · 2026Article
- The State-of-the-Art of Patient Portals: Adapting to External Factors, Addressing Barriers, and Innovating.Applied clinical informatics · 2023Review
- Mixed-methods study examining family carers' perceptions of the relationship between intrahospital transitions and patient readiness for discharge.BMJ quality & safety · 2023Article
- Article
- The FutureS of healthcare.Futures · 2021Article
- Technology-Based Interventions for Cancer Caregivers: Concept Analysis.JMIR cancer · 2021Article
- Determinants of Use of the Care Information Exchange Portal: Cross-sectional Study.Journal of medical Internet research · 2021Article
- User-centered design of a scalable, electronic health record-integrated remote symptom monitoring intervention for patients with asthma and providers in primary care.Journal of the American Medical Informatics Association : JAMIA · 2021Article
- Innovative Strategies to Facilitate Safe Assessment and Intervention for Intimate Partner Violence During a Pandemic and Beyond.Nursing for women's health · 2021Article
- Patient Portals to Support Palliative and End-of-Life Care: Scoping Review.Journal of medical Internet research · 2021Article
- Evaluation of electronic health record-integrated digital health tools to engage hospitalized patients in discharge preparation.Journal of the American Medical Informatics Association : JAMIA · 2021Article
- Resilience From a Stakeholder Perspective: The Role of Next of Kin in Cancer Care.Journal of patient safety · 2020Article
2 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
16 authors.
Funding
Abstract
We implemented a web-based, patient-centered toolkit that engages patients/caregivers in the hospital plan of care by facilitating education and patient-provider communication. Of the 585 eligible patients approached on medical intensive care and oncology units, 239 were enrolled (119 patients, 120 caregivers). The most common reason for not approaching the patient was our inability to identify a health care proxy when a patient was incapacitated. Significantly more caregivers were enrolled in medical intensive care units compared with oncology units (75% vs 32%; P < .01). Of the 239 patient/caregivers, 158 (66%) and 97 (41%) inputted a daily and overall goal, respectively. Use of educational content was highest for medications and test results and infrequent for problems. The most common clinical theme identified in 291 messages sent by 158 patients/caregivers was health concerns, needs, preferences, or questions (19%, 55 of 291). The average system usability scores and satisfaction ratings of a sample of surveyed enrollees were favorable. From analysis of feedback, we identified barriers to adoption and outlined strategies to promote use.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.