Evidence map›Paper›PMID 26228766›Full record

ArticleJournal of the American Medical Informatics Association : JAMIA2016

Integrating community-based participatory research and informatics approaches to improve the engagement and health of underserved populations.

Kim M Unertl, Chris L Schaefbauer, Terrance R Campbell, Charles Senteio, Katie A Siek, Suzanne Bakken, Tiffany C Veinot

Abstract readComparative Study
In one paragraph

Article in Journal of the American Medical Informatics Association : JAMIA, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 103 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
103citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

103 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
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  14. Development of an electronic system for self/proxy symptom tracking alongside children with cancer and their caregivers: a co-design exemplar.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
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  16. Review
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  18. Rural health research in the 21st century: A commentary on challenges and the role of digital technology.The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association · 2025
    Article
  19. Article
  20. Article

43 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Kim M UnertlDepartment of Biomedical Informatics, Vanderbilt University School of Medicine, Nashville, Tennessee, USA kim.unertl@vanderbilt.edu.
Chris L SchaefbauerDepartment of Computer Science, University of Colorado Boulder, Boulder, Colorado, USA.
Terrance R CampbellYOUR Center, Flint, Michigan, USA.
Charles SenteioSchool of Information, University of Michigan, Ann Arbor, Michigan, USA.
Katie A SiekInformatics Division, Indiana University Bloomington, Bloomington, Indiana, USA.
Suzanne BakkenSchool of Nursing and Department of Biomedical Informatics, Columbia University, New York, New York, USA.
Tiffany C VeinotSchool of Information and School of Public Health, University of Michigan, Ann Arbor, Michigan, USA.

Funding

Clinical and Translational Science AwardUL1TR000040 · NCATS · COLUMBIA UNIVERSITY HEALTH SCIENCES · PI GINSBERG, HENRY N · 2012 to 2015
$26.2M
Washington Heights Initiative Community-based Comparative Effectiveness ResearchR01HS019853 · AHRQ · COLUMBIA UNIVERSITY HEALTH SCIENCES · PI BAKKEN, SUZANNE · 2010 to 2010
$8.9M
PREVENTION RESEARCH CENTER OF MICHIGANU48DP001901 · DP · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI ZIMMERMAN, MARC A · 2009 to 2013
$5.9M
WICER 4UR01HS022961 · AHRQ · COLUMBIA UNIVERSITY HEALTH SCIENCES · PI BAKKEN, SUZANNE · 2013 to 2013
$750k
Developing New Approaches to Chronic Disease Care: Collaborative Team WorkflowK22LM011382 · NLM · VANDERBILT UNIVERSITY MEDICAL CENTER · PI UNERTL, KIM M · 2012 to 2014
$457k
AHRQ HHS R01HS019853AHRQ HHS R01 HS022961AHRQ HHS R01HS022961NCATS NIH HHS UL1TR00040NCCDPHP CDC HHS 1-U48-DP-001901NLM NIH HHS 5K22LM011382
6 · The paper itself

Abstract

objectiveWe compare 5 health informatics research projects that applied community-based participatory research (CBPR) approaches with the goal of extending existing CBPR principles to address issues specific to health informatics research. MATERIALS AND

methodsWe conducted a cross-case analysis of 5 diverse case studies with 1 common element: integration of CBPR approaches into health informatics research. After reviewing publications and other case-related materials, all coauthors engaged in collaborative discussions focused on CBPR. Researchers mapped each case to an existing CBPR framework, examined each case individually for success factors and barriers, and identified common patterns across cases.

resultsBenefits of applying CBPR approaches to health informatics research across the cases included the following: developing more relevant research with wider impact, greater engagement with diverse populations, improved internal validity, more rapid translation of research into action, and the development of people. Challenges of applying CBPR to health informatics research included requirements to develop strong, sustainable academic-community partnerships and mismatches related to cultural and temporal factors. Several technology-related challenges, including needs to define ownership of technology outputs and to build technical capacity with community partners, also emerged from our analysis. Finally, we created several principles that extended an existing CBPR framework to specifically address health informatics research requirements.

conclusionsOur cross-case analysis yielded valuable insights regarding CBPR implementation in health informatics research and identified valuable lessons useful for future CBPR-based research. The benefits of applying CBPR approaches can be significant, particularly in engaging populations that are typically underserved by health care and in designing patient-facing technology.

Indexed as

Community-Based Participatory ResearchMedical InformaticsVulnerable PopulationsBiomedical ResearchHumansMedically Underserved AreaUnited Statescommunity-based participatory researchmHealthpatient-centered carepatient empowermentresearch design

Identifiers

PMID26228766
PMCPMC4713901

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.