ArticleArthritis care & research2016
Initial Benchmarking of the Quality of Medical Care in Childhood-Onset Systemic Lupus Erythematosus.
Article in Arthritis care & research, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
20 citing papers in PubMed, 28 citations in OpenAlex.
- Juvenile Inflammatory Rheumatism Real-Life Clinical Practice Strategies (JIR-CliPS) network: methodology and the development process.Orphanet journal of rare diseases · 2026Article
- New Insights on Childhood Lupus Nephritis.International journal of nephrology and renovascular disease · 2025Review
- Influenza knowledge and barriers to vaccination in immunosuppressed patients in the pediatric rheumatology clinic.Pediatric rheumatology online journal · 2024Article
- Improving Outcomes of Pediatric Lupus Care Delivery With Provider Goal-Setting Activities and Multidisciplinary Care Models.Arthritis care & research · 2023Article
- Childhood-Onset Lupus Nephritis in the Childhood Arthritis and Rheumatology Research Alliance Registry: Short-Term Kidney Status and Variation in Care.Arthritis care & research · 2023Article
- Usefulness of the lupus low disease activity state as a treatment target in childhood-onset SLE.Lupus science & medicine · 2023Article
- Health disparities in outcomes of pediatric systemic lupus erythematosus.Frontiers in pediatrics · 2022Review
- Factors Associated With Variation in Pediatric Systemic Lupus Erythematosus Care Delivery.ACR open rheumatology · 2021Article
- An Update on the Management of Childhood-Onset Systemic Lupus Erythematosus.Paediatric drugs · 2021Review
- Performance of the New 2019 European League Against Rheumatism/American College of Rheumatology Classification Criteria for Systemic Lupus Erythematosus in Children and Young Adults.Arthritis care & research · 2021Article
- Impact of the longitudinal quantitative assessment of juvenile systemic lupus erythematosus severity on the disease outcome.Clinical rheumatology · 2021Article
- Use of Quality Measures to Identify Disparities in Health Care for Systemic Lupus Erythematosus.Rheumatic diseases clinics of North America · 2020Review
- American College of Rheumatology Provisional Criteria for Clinically Relevant Improvement in Children and Adolescents With Childhood-Onset Systemic Lupus Erythematosus.Arthritis care & research · 2019Article
- Assessing Unwanted Variations in Rheumatology Clinic Previsit Rooming.Journal of clinical rheumatology : practical reports on rheumatic & musculoskeletal diseases · 2019Article
- Epidemiology and management practices for childhood-onset systemic lupus erythematosus patients: a survey in Latin America.Clinical rheumatology · 2018Article
- American College of Rheumatology Provisional Criteria for Global Flares in Childhood-Onset Systemic Lupus Erythematosus.Arthritis care & research · 2018Article
- Advances in the care of children with lupus nephritis.Pediatric research · 2017Review
- Evaluation of quality indicators and disease damage in childhood-onset systemic lupus erythematosus patients.Clinical rheumatology · 2017Article
- Variation in Preventive Care in Children Receiving Chronic Glucocorticoid Therapy.The Journal of pediatrics · 2016Article
- Improving care delivery and outcomes in pediatric rheumatic diseases.Current opinion in rheumatology · 2016Review
Corrections and comments
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Authors and funding
19 authors at 9 institutions in 4 countries.
Funding
Abstract
objectiveTo assess the quality of medical care in childhood-onset systemic lupus erythematosus (SLE) at tertiary pediatric rheumatology centers as measured by observance of SLE quality indicators (SLE-QIs).
methodsInternational consensus has been achieved for childhood-onset SLE-QIs capturing medical care provision in 9 domains: diagnostic testing, education of cardiovascular (CV) risk and lifestyles, lupus nephritis (LN), medication management, bone health, ophthalmologic surveillance, transition, pregnancy, and vaccination. Using medical record information, the level of performance of these childhood-onset SLE-QIs was assessed in childhood-onset SLE populations treated at 4 tertiary pediatric rheumatology centers in the US, 2 in Brazil, and 1 center in India.
resultsA total of 483 childhood-onset SLE patients were assessed. Care for the 310 US patients differed markedly for childhood-onset SLE-QIs addressing LN, bone health, vaccinations, education on CV risk, and transition planning. Performance of safety blood testing for medications was high at all centers. Despite often similar performance on the childhood-onset SLE-QI, access to kidney biopsies was lower in Brazil than in the US. Irrespective of the country of practice, larger centers tended to meet the childhood-onset SLE-QIs more often than smaller centers.
conclusionThe childhood-onset SLE-QIs, evidence-based minimum standards of medical care, are not consistently met in the US or some other countries outside the US. This has the potential to contribute to suboptimal childhood-onset SLE outcomes.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.