ArticleBMC gastroenterology2015
"And then you start to loose it because you think about Nutella": The significance of food for people with inflammatory bowel disease - a qualitative study.
Article in BMC gastroenterology, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
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Who cites it
16 citing papers in PubMed.
- Trial
- Unveiling Food Avoidance Among Patients With Inflammatory Bowel Disease: Patterns and Pathways to Better Dietary Management.Journal of nursing management · 2026Article
- IBD Is Like a Tree: Reflections From Older Adults With Inflammatory Bowel Disease.Inflammatory bowel diseases · 2025Article
- Intolerance of uncertainty and mental health in patients with IBD: the mediating role of maladaptive coping.Scientific reports · 2025Article
- The Crohn's Disease Exclusion Diet: A Comprehensive Review of Evidence, Implementation Strategies, Practical Guidance, and Future Directions.Inflammatory bowel diseases · 2024Review
- Food-Related Quality of Life and Its Predictors in Inflammatory Bowel Disease.Digestive diseases and sciences · 2024Article
- Exclusive Enteral Nutrition for the Treatment of Pediatric Crohn's Disease: The Patient Perspective.Pediatric gastroenterology, hepatology & nutrition · 2023Article
- Difficulties in eating out of home while diagnosed with inflammatory bowel disease: A qualitative interview study from China.PloS one · 2023Article
- Food and Inflammatory Bowel Diseases: A scoping review on the impact of food on patients' psychosocial quality of life.Health & social care in the community · 2022Article
- A patient-led, peer-to-peer qualitative study on the psychosocial relationship between young adults with inflammatory bowel disease and food.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- The dietary practices and beliefs of British South Asian people living with inflammatory bowel disease: a multicenter study from the United Kingdom.Intestinal research · 2022Article
- Online Acceptance and Commitment Therapy and Nutrition Workshop for Parents of Children with Inflammatory Bowel Disease: Feasibility, Acceptability, and Initial Effectiveness.Children (Basel, Switzerland) · 2021Article
- Disordered Eating, Body Dissatisfaction, and Psychological Distress in Patients with Inflammatory Bowel Disease (IBD).Journal of clinical psychology in medical settings · 2020Article
- Dietary strategies and food practices of pediatric patients, and their parents, living with inflammatory bowel disease: a qualitative interview study.International journal of qualitative studies on health and well-being · 2019Article
- Are there also negative effects of social support? A qualitative study of patients with inflammatory bowel disease.BMJ open · 2019Article
- Walking in a Patient's Shoes: An Evaluation Study of Immersive Learning Using a Digital Training Intervention.Frontiers in psychology · 2018Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundMany patients with inflammatory bowel disease strongly believe that food or certain food products heavily influence the symptoms or even trigger acute flare-ups. Unfortunately, there is no generalizable information for these patients, and therefore no effective diet has been identified to date.
methodsThe narrative interviews we used for this study provide the basis for the German website www.krankheitserfahrungen.de . Maximum-variation sampling was used to include a broad range of experiences and a variety of different factors that might influence people's experiences. The sample included men and women of different age groups and social and ethnic backgrounds from across Germany. The interviews were analyzed using grounded theory.
resultsFour interrelated categories emerged: managing uncertainty, eating: between craving and aversion, being different and professional help as a further source of uncertainty. The most important issue for our responders was the handling of uncertainty and to find a way between desire for, and aversion against, eating. Many participants described difficulties during formal social occasions such as weddings, birthdays, or when going out to a restaurant.
conclusionsMany of the experiences the participants reported in their daily struggle with food and their illness, such as cravings for and abstaining from certain foods, were rather unusual and often stressful. Because they decided not to go out in public any longer, some of the interviewees experienced even more social isolation than they did before. Health professionals need to become more involved and not only advice about food and eating, but also help their patients find strategies for avoiding social isolation.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.