SynthesisAmerican journal of kidney diseases : the official journal of the National Kidney Foundation2015
Patient-Reported Outcome Instruments for Physical Symptoms Among Patients Receiving Maintenance Dialysis: A Systematic Review.
Synthesis in American journal of kidney diseases : the official journal of the National Kidney Foundation, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers.
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Who cites it
25 citing papers in PubMed.
- Kidney Disease: Improving Global Outcomes (KDIGO) Workshop on the Nurse's Role in Managing the Symptoms of People Receiving Dialysis.Kidney international reports · 2025Article
- Insights into effective fatigue reducing interventions in kidney transplant candidates: a scoping review.Annals of behavioral medicine : a publication of the Society of Behavioral Medicine · 2025Article
- The mediating effect of alexithymia in the symptom burden and depression in patients with maintenance hemodialysis.Frontiers in psychology · 2025Article
- The Effect of Muscle Cramps During Hemodialysis on Quality of Life and Habitual Physical Activity.Medicina (Kaunas, Lithuania) · 2024Article
- High Symptom Burden in Patients With Advanced Chronic or Prolonged Infectious Diseases: Not Only Pain.Cureus · 2024Article
- The Scale of Perceptions and Self-Participation in Hemodialysis: Development and Psychometric Evaluation.Healthcare (Basel, Switzerland) · 2023Article
- Factors Related to Quality of Life of Hemodialysis Patients during the COVID-19 Pandemic.Healthcare (Basel, Switzerland) · 2023Article
- Dietary Intake Correlated to Waist-To-Hip Ratio in Patients on Maintenance Hemodialysis.Journal of renal nutrition : the official journal of the Council on Renal Nutrition of the National Kidney Foundation · 2023Article
- Development of a preliminary conceptual model of the patient experience of chronic kidney disease: a targeted literature review and analysis.BMC nephrology · 2021Review
- The Relationship between Dialysis Metrics and Patient-Reported Cognition, Fatigue, and Physical Function.Kidney diseases (Basel, Switzerland) · 2020Article
- Enabling good outcomes in older adults on dialysis: a qualitative study.BMC nephrology · 2020Article
- Patient-reported outcome measures: selection of a valid questionnaire for routine symptom assessment in patients with advanced chronic kidney disease - a four-phase mixed methods study.BMC nephrology · 2019Article
- Patient-Reported Outcomes: Toward Better Measurement of Patient-Centered Care in CKD.Journal of the American Society of Nephrology : JASN · 2019Article
- Development and content validity of a hemodialysis symptom patient-reported outcome measure.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2019Article
- Symptom burden amongst patients suffering from end-stage renal disease and receiving dialysis: A literature review.International journal of nursing sciences · 2018Review
- Perspectives on symptom experiences and symptom reporting among individuals on hemodialysis.Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association · 2018Article
- Data and knowledge standards for learning health: A population management example using chronic kidney disease.Learning health systems · 2018Article
- Quality of life, clinical outcome, personality and coping in chronic hemodialysis patients.Renal failure · 2017Observational
- Symptoms among patients receiving in-center hemodialysis: A qualitative study.Hemodialysis international. International Symposium on Home Hemodialysis · 2017Article
- Physical frailty and functional status in patients with advanced kidney disease: a protocol for a systematic review.Systematic reviews · 2017Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
backgroundPatients with end-stage renal disease (ESRD) receiving dialysis have poor health-related quality of life. Physical symptoms are highly prevalent among dialysis-dependent patients and play important roles in health-related quality of life. A range of symptom assessment tools have been used in dialysis-dependent patients, but there has been no previous systematic assessment of the existing symptom measures' content, validity, and reliability. STUDY
designSystematic review of the literature. SETTINGS & POPULATION: Patients with ESRD on maintenance dialysis therapy. SELECTION CRITERIA FOR STUDIES: Instruments with 3 or more physical symptoms previously used in dialysis-dependent patients and evidence of validity or reliability testing.
interventionPatient-reported physical symptom assessment instrument. OUTCOMES: Instrument symptom-related content, validity, and reliability.
resultsFrom 3,148 screened abstracts, 89 full-text articles were eligible for review. After article exclusion and further article identification by reference reviews, 58 articles on 23 symptom assessment instruments with documented reliability or validity testing were identified. Of the assessment instruments, 43.5% were generic and 56.5% were ESRD specific. Symptoms most frequently assessed were fatigue, shortness of breath, insomnia, nausea and vomiting, and appetite. Instruments varied widely in respondent time burden, recall period, and symptom attributes. Few instruments considered recall periods less than 2 weeks and few assessed a range of symptom attributes. Psychometric testing was completed for congruent validity (70%), known-group validity (25%), responsiveness (30%), internal consistency (78%), and test-retest reliability (65%). Content validity was assessed in dialysis populations in 57% of the 23 instruments. LIMITATIONS: Consideration of physical symptoms only and exclusion of single symptom-focused instruments.
conclusionsThe number of available instruments focused exclusively on physical symptoms in dialysis patients is limited. Few symptom-containing instruments have short recall periods, assess diverse symptom attributes, and have undergone comprehensive psychometric testing. Improved symptom-focused assessment tools are needed to improve symptom evaluation and symptom responsiveness to intervention among dialysis-dependent patients.
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