Evidence map›Paper›PMID 26201037›Full record

GuidelineJournal of pediatric hematology/oncology2015

Guidelines for the Standard Monitoring of Patients With Thalassemia: Report of the Thalassemia Longitudinal Cohort.

Venée N Tubman, Ellen B Fung, Maria Vogiatzi, Alexis A Thompson, Zora R Rogers, Ellis J Neufeld, Janet L Kwiatkowski, Thalassemia Clinical Research Network

Abstract readPractice Guideline
In one paragraph

Guideline in Journal of pediatric hematology/oncology, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers.

0numbers the graph read from it
0cells of the map it votes in
26citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

26 citing papers in PubMed.

  1. Unrelated Donor Transplantation in Children with Thalassemia using Reduced-Intensity Conditioning: The URTH Trial.Biology of blood and marrow transplantation : journal of the American Society for Blood and Marrow Transplantation · 2018
    Trial
  2. Article
  3. Article
  4. Review
  5. Observational
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  12. Article
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  15. Article
  16. Article
  17. Review
  18. Article
  19. Article
  20. Experience of Uncertainty in Patients with Thalassemia Major: A Qualitative Study.International journal of hematology-oncology and stem cell research · 2020
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Venée N Tubman*Boston Children's Hospital, Boston, MA †Children's Hospital & Research Center Oakland, Oakland, CA ‡Weill Medical College of Cornell, New York, NY §Children's Memorial Hospital, Chicago, IL ∥University of Texas Southwestern Medical Center, Dallas, TX ¶Children's Hospital of Philadelphia, Philadelphia, PA.
Ellen B Fung
Maria Vogiatzi
Alexis A Thompson
Zora R Rogers
Ellis J Neufeld
Janet L Kwiatkowski
Thalassemia Clinical Research Network

Funding

UCSF CLINICAL AND TRANSLATIONAL SCIENCE INSTITUTEUL1RR024131 · NCRR · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI JOHNSTON, S. CLAIBORNE · 2006 to 2011
$111.2M
HARVARD CLINICAL AND TRANSLATIONAL SCIENCE CENTER (UL1)UL1RR025758 · NCRR · HARVARD MEDICAL SCHOOL · PI NADLER, LEE MARSHALL · 2008 to 2011
$91.4M
Disparities in COVID Disease Severity and Outcomes in New York CityUL1TR002384 · NCATS · WEILL MEDICAL COLL OF CORNELL UNIV · PI JULIANNE L IMPERATO-MCGINLEY · 2017 to 2026
$86.2M
INSTITUTIONAL CLINICAL AND TRANSLATIONAL SCIENCE AWARDUL1RR024134 · NCRR · UNIVERSITY OF PENNSYLVANIA · PI FITZGERALD, GARRET A · 2006 to 2011
$70.4M
CTSA INFRASTRUCTURE FOR PEDIATRIC RESEARCHUL1RR024996 · NCRR · WEILL MEDICAL COLL OF CORNELL UNIV · PI IMPERATO-MCGINLEY, JULIANNE L · 2007 to 2011
$49.6M
PATHOPHYSIOLOGY OF HUMAN BLOOD CELLST32HL007574 · NHLBI · CHILDREN'S HOSPITAL BOSTON · PI Daniel Evan Bauer · 1985 to 2026
$18.4M
Thalassemia Network - RegistryU01HL065238 · NHLBI · NEW ENGLAND RESEARCH INSTITUTES, INC. · PI MCKINLAY, SONJA M · 2000 to 2009
$13.3M
Thalassemia Clinical Research NetworkU01HL065239 · NHLBI · CHILDREN'S HOSPITAL &RES CTR AT OAKLAND · PI VICHINSKY, ELLIOTT P · 2000 to 2009
$2.7M
Transfusion Medicine/Hemostasis Clinical Trials NetworkU01HL072291 · NHLBI · CHILDREN'S HOSPITAL BOSTON · PI NEUFELD, ELLIS J · 2002 to 2011
$2.6M
Thalassemia Clinical Research Network, CanadaU01HL065233 · NHLBI · UNIVERSITY HEALTH NETWORK · PI OLIVIERI, NANCY F · 2000 to 2009
$2.6M
Thalassemia Clinical Research NetworkU01HL065244 · NHLBI · WEILL MEDICAL COLL OF CORNELL UNIV · PI GIARDINA, PATRICIA J · 2000 to 2009
$2.3M
THE MID-ATLANTIC THALASSEMIA CONSORTIUMU01HL065232 · NHLBI · CHILDREN'S HOSP OF PHILADELPHIA · PI KWIATKOWSKI, JANET L · 2000 to 2009
$2.0M
NCATS NIH HHS UL1 TR002384NCRR NIH HHS UL1 RR024131NCRR NIH HHS UL1 RR024134NCRR NIH HHS UL1-RR024134NCRR NIH HHS UL1 RR024996NCRR NIH HHS UL1-RR024996NCRR NIH HHS UL1 RR025758NCRR NIH HHS UL1-RR-025758NCRR NIH HHS ULI-RR024131NHLBI NIH HHS T32 HL007574NHLBI NIH HHS U01 HL065232NHLBI NIH HHS U01 HL065233NHLBI NIH HHS U01 HL065238NHLBI NIH HHS U01 HL065239NHLBI NIH HHS U01 HL065244NHLBI NIH HHS U01 HL072291NHLBI NIH HHS U01-HL65232NHLBI NIH HHS U01-HL65233NHLBI NIH HHS U01-HL65238NHLBI NIH HHS U01-HL65239NHLBI NIH HHS U01-HL65244NHLBI NIH HHS U01-HL72291
6 · The paper itself

Abstract

Chronic transfusion therapy has played a central role in extending life expectancy for patients with hemoglobinopathies such as thalassemia. However, this life-saving therapy is associated with numerous complications that now comprise the bulk of management considerations for patients with thalassemia. This review reports on the experience of the Thalassemia Longitudinal Cohort and reviews available literature to establish guidelines for the management of patients with thalassemia.

Indexed as

Blood TransfusionHemoglobinopathiesHumansLongitudinal StudiesMonitoring, PhysiologicThalassemia

Identifiers

PMID26201037
PMCPMC4511957

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.