ArticleThe Journal of urology2015
Characterizing Early Psychosocial Functioning of Parents of Children with Moderate to Severe Genital Ambiguity due to Disorders of Sex Development.
Article in The Journal of urology, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 36 papers, 4 of them syntheses that pooled it.
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Who cites it
36 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Clinical practice guidelines for the management of differences of sex development in Japan.Endocrine journal · 2026Guideline
- Quality of life of parents with children with congenital abnormalities: a systematic review with meta-analysis of assessment methods and levels of quality of life.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Pooled it
- Depression in Turner Syndrome: A Systematic Review.Archives of sexual behavior · 2020Pooled it
- Meta-Analysis: Caregiver and Youth Uncertainty in Pediatric Chronic Illness.Journal of pediatric psychology · 2017Pooled it
- Parental anxiety in differences of sex development and hypospadias: a psychosocial characterization.Journal of the Endocrine Society · 2026Article
- CANDID Study: Clinical and Molecular Characterization of Congenital Arginine Vasopressin-Resistance and the Use of a Novel Diagnostic Biomarker in Indian Children.Indian journal of pediatrics · 2026Article
- Clinical practice guidelines for the management of differences of sex development in Japan.Clinical pediatric endocrinology : case reports and clinical investigations : official journal of the Japanese Society for Pediatric Endocrinology · 2026Review
- Validation of a parent-reported outcome measure for young boys with a condition affecting sex development (PRO-CSD).Archives of disease in childhood · 2025Article
- Family functioning in adolescents and young adults with differences of sex development.Journal of pediatric psychology · 2025Article
- Development and validation of a short version of the quality of life-DSD questionnaire for parents of young children with conditions affecting sex development.Endocrine connections · 2024Article
- Trajectories of illness uncertainty among parents of children with atypical genital appearance due to differences of sex development.Journal of pediatric psychology · 2024Article
- Exploratory factor analysis of the Illness Intrusiveness Rating Scale for parents of children with atypical genital appearance due to differences of sex development (DSD).Journal of pediatric psychology · 2024Article
- Extensive Literature Review of 46,XX Newborns with Congenital Adrenal Hyperplasia and Severe Genital Masculinization: Should They Be Assigned and Reared Male?Journal of clinical research in pediatric endocrinology · 2024Review
- Factors influencing illness uncertainty in parents of children with congenital adrenal hyperplasia in a developing country: A cross-sectional study.Belitung nursing journal · 2023Article
- Prenatal detection and evaluation of differences of sex development: A qualitative interview study of parental perspectives and unmet needs.Prenatal diagnosis · 2022Article
- Differences/Disorders of Sex Development: Medical Conditions at the Intersection of Sex and Gender.Annual review of clinical psychology · 2022Review
- Decisional regret about surgical and non-surgical issues after genitoplasty among caregivers of female infants with CAH.Journal of pediatric urology · 2022Article
- Factor Analysis of the Stigma Scale-Parent Version in Pediatric Disorders/Differences of Sex Development.Stigma and health · 2021Article
- Parent experience with volunteers and support groups in a multidisciplinary DSD clinic.Clinical practice in pediatric psychology · 2020Article
- Post-operative complications following feminizing genitoplasty in moderate to severe genital atypia: Results from a multicenter, observational prospective cohort study.Journal of pediatric urology · 2020Observational
Corrections and comments
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Authors and funding
23 authors.
Funding
Abstract
purposeWe examined the psychosocial characteristics of parents of children with disorders of sex development at early presentation to a disorders of sex development clinic. Parental anxiety, depression, quality of life, illness uncertainty and posttraumatic stress symptoms were assessed. Additionally we evaluated the relationship of assigned child gender to parental outcomes. MATERIALS AND
methodsA total of 51 parents of children with ambiguous or atypical genitalia were recruited from 7 centers specializing in treatment of disorders of sex development. At initial assessment no child had undergone genitoplasty. Parents completed the Cosmetic Appearance Rating Scale, Beck Anxiety Inventory, Beck Depression Inventory, SF-36, Parent Perception of Uncertainty Scale and Impact of Event Scale-Revised.
resultsA large percentage of parents (54.5%) were dissatisfied with the genital appearance of their child, and a small but significant percentage reported symptoms of anxiety, depression, diminished quality of life, uncertainty and posttraumatic stress. Few gender differences emerged.
conclusionsAlthough many parents function well, a subset experience significant psychological distress around the time of diagnosis of a disorder of sex development in their child. Early screening to assess the need for psychosocial interventions is warranted.
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