Evidence map›Paper›PMID 26191535›Full record

ArticleJournal of the Association for Information Science and Technology2015

Patient Portal Preferences: Perspectives on Imaging Information.

Mary McNamara, Corey Arnold, Karthik Sarma, Denise Aberle, Edward Garon, Alex A T Bui

Abstract read
In one paragraph

Article in Journal of the Association for Information Science and Technology, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed.

  1. Design and evaluation patient portal for patients with HTLV-1.BMC medical informatics and decision making · 2025
    Article
  2. Article
  3. Review
  4. Article
  5. Full Radiology Report through Patient Web Portal: A Literature Review.International journal of environmental research and public health · 2020
    Review
  6. Article
  7. Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. Data model for personalized patient health guidelines: an exploratory study.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2014
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Mary McNamaraDepartment of Bioengineering, University of California, Los Angeles, 924 Westwood Boulevard, Suite 420, Los Angeles, CA 90024.
Corey ArnoldDepartment of Radiological Sciences, University of California, Los Angeles, 924 Westwood Boulevard, Suite 420, Los Angeles, CA 90024.
Karthik SarmaDavid Geffen School of Medicine, University of California, Los Angeles, 924 Westwood Boulevard, Suite 420, Los Angeles, CA 90024.
Denise AberleDepartment of Bioengineering and Department of Radiological Sciences, University of California, Los Angeles, 924 Westwood Boulevard, Suite 420, Los Angeles, CA 90024.
Edward GaronDepartment of Medicine, Hematology, and Oncology, University of California, Los Angeles, 924 Westwood Boulevard, Suite 420, Los Angeles, CA 90024.
Alex A T BuiDepartment of Radiological Sciences, University of California, Los Angeles, 924 Westwood Boulevard, Suite 420, Los Angeles, CA 90024.

Funding

Training Program for Imaging Based Medical InformaticsT15LM007356 · NLM · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI BUI, ALEX · 2002 to 2011
$5.0M
RUMI: A patient portal for retrieving understandable medical informationR01LM011333 · NLM · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI BUI, ALEX · 2012 to 2015
$1.3M
Inhibiting EGFR and ER pathways in NSCLCK23CA149079 · NCI · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI GARON, EDWARD B · 2011 to 2015
$826k
NCI NIH HHS K23 CA149079NLM NIH HHS R01 LM011333NLM NIH HHS T15 LM007356
6 · The paper itself

Abstract

Patient portals have the potential to provide content that is specifically tailored to a patient's information needs based on diagnoses and other factors. In this work, we conducted a survey of 41 lung cancer patients at an outpatient lung cancer clinic at the medical center of the University of California Los Angeles, to gain insight into these perceived information needs and opinions on the design of a portal to fulfill them. We found that patients requested access to information related to diagnosis and imaging, with more than half of the patients reporting that they did not anticipate an increase in anxiety due to access to medical record information via a portal. We also found that patient educational background did not lead to a significant difference in desires for explanations of reports and definitions of terms.

Identifiers

PMID26191535
PMCPMC4504683

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.