ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2016
How does the EQ-5D perform when measuring quality of life in dementia against two other dementia-specific outcome measures?
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 4 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
23 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Preference-based measures in people with dementia: a systematic review of psychometric properties.Health and quality of life outcomes · 2026Pooled it
- Measurement properties of the EQ-5D in populations with a mean age of ≥ 75 years: a systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Pooled it
- Health-Related Quality of Life in Patients With Different Diseases Measured With the EQ-5D-5L: A Systematic Review.Frontiers in public health · 2021Pooled it
- Health economic evaluations of non-pharmacological interventions for persons with dementia and their informal caregivers: a systematic review.BMC geriatrics · 2018Pooled it
- Efficacy and cost-effectiveness of extended nursing roles in dementia care: Results of the cluster-randomized trial InDePendent.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Trial
- Effects of an interprofessional deprescribing intervention in Swiss nursing homes: the Individual Deprescribing Intervention (IDeI) randomised controlled trial.BMC geriatrics · 2021Trial
- Assistive technology and telecare to maintain independent living at home for people with dementia: the ATTILA RCT.Health technology assessment (Winchester, England) · 2021Trial
- Exploring self-report and proxy-report quality-of-life measures for people living with dementia in care homes.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2020Trial
- Trial
- Assessing the reliability and validity of the Italian EQ-5D-5 L in multiple sclerosis: a cross-sectional study.Journal of patient-reported outcomes · 2026Article
- Examining the face validity of the EQ-HWB-9 in dementia: caregiver interpretation across "Today" and "7-Day" recall periods.Health and quality of life outcomes · 2026Article
- Implementing Arts on Prescription at Home for People Living With Dementia: A Hybrid-Effectiveness Feasibility Study.Journal of geriatric psychiatry and neurology · 2025Article
- Counting what counts: assessing quality of life and its social determinants among nursing home residents with dementia.BMC geriatrics · 2024Article
- Feasibility of self-reported health related quality of life assessment with older people in residential care: insights from the application of eye tracking technology.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- The Validity of Health-Related Quality of Life Instruments in Patients With Late-Stage Parkinson's Disease.Journal of geriatric psychiatry and neurology · 2023Article
- Fluctuations of health states in dementia diseases and their impact on the assessment of health today using the EQ-5D-5L: Protocol of a mixed-methods study.Frontiers in public health · 2023Article
- Social interactions and quality of life of residents in aged care facilities: A multi-methods study.PloS one · 2022Article
- Quality of Life Assessments in Individuals With Young-Onset Dementia and Their Caregivers.Journal of geriatric psychiatry and neurology · 2021Article
- Quality of life in nursing home residents with pain: pain interference, depression and multiple pain-related diseases as important determinants.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2020Article
- Health-related quality of life in people with advanced dementia: a comparison of EQ-5D-5L and QUALID instruments.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThis study aimed to assess and compare the psychometric performance of the EQ-5D in relation to other dementia-specific measures, the QoL-AD and DEMQoL, within a psychosocial intervention study.
methodsTwo hundred and seventy-two people with dementia completed the EQ-5D, DEMQoL and QoL-AD. Convergent and discriminant validity of the measures were assessed, and inter-rater reliability was tested by comparing the self-reported and proxy scores of the measures. Internal consistency was tested using Cronbach's alpha.
resultsResults satisfy convergent validity amongst the three outcome measures. EQ-5D, DEMQoL and QoL-AD total scores were shown to be significantly correlated with each other (p < 0.001) in both participants with dementia and proxy reports. Results also satisfied discriminant validity for participant EQ-5D, DEMQoL and QoL-AD total scores. In relation to reliability between self and proxy scores, the EQ-5D showed higher reliability scores between participant and proxy total scores for mild and moderate level of cognitive impairment and performed better than the dementia-specific measures. Reliability assessed through Cronbach's alpha was satisfactory, indicating adequate internal consistency of all three measures.
conclusionsThe results suggest that the EQ-5D might have advantages over other dementia-specific measures, and it could be used routinely and as a stand-alone measure of quality of life in dementia research.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.