ArticleJournal of genetic counseling1997
Family Communication and Genetic Counseling: The Case of Hereditary Breast and Ovarian Cancer.
Article in Journal of genetic counseling, 1997. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 52 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
52 citing papers in PubMed, 1 synthesis or guideline pooled it, 190 citations in OpenAlex.
- Men in the women's world of hereditary breast and ovarian cancer--a systematic review.Familial cancer · 2009Pooled it
- Communicating genetic test results within the family: Is it lost in translation? A survey of relatives in the randomized six-step study.Familial cancer · 2016Trial
- Preparing individuals to communicate genetic test results to their relatives: report of a randomized control trial.Familial cancer · 2013Trial
- The effect of a school-based educational intervention on gender differences in reported family cancer history.Journal of cancer education : the official journal of the American Association for Cancer Education · 2008Trial
- Knowledge and expectations of women undergoing cancer genetic risk assessment: a qualitative analysis of free-text questionnaire comments.Journal of genetic counseling · 2007Trial
- Cancer family history reporting: impact of method and psychosocial factors.Journal of genetic counseling · 2007Trial
- Family communication of cancer genetic test results in an ethnically diverse population: a qualitative exploration of more than 200 patients.Journal of community genetics · 2024Article
- Factors that Influence Intent to Share Genetic Information Related to Cancer Risk with Family Members.Journal of health communication · 2021Article
- Disclosure to genetic relatives without consent - Australian genetic professionals' awareness of the health privacy law.BMC medical ethics · 2020Article
- Familial communication and cascade testing among relatives of BRCA population screening participants.Genetics in medicine : official journal of the American College of Medical Genetics · 2018Article
- Cancer Risk Information Sharing: The Experience of Individuals Receiving Genetic Counseling for BRCA1/2 Mutations.Journal of health communication · 2017Article
- Family Communication in Inherited Cardiovascular Conditions in Ireland.Journal of genetic counseling · 2016Article
- Assessment of the Readability of Genetic Counseling Patient Letters.Journal of genetic counseling · 2016Article
- Anticipated stigma and blameless guilt: Mothers' evaluation of life with the sex-linked disorder, hypohidrotic ectodermal dysplasia (XHED).Social science & medicine (1982) · 2016Article
- Social determinants of family health history collection.Journal of community genetics · 2016Article
- Family health information sharing among older adults: reaching more family members.Journal of community genetics · 2015Article
- Patients' Choices for Return of Exome Sequencing Results to Relatives in the Event of Their Death.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2015Article
- Completeness of pedigree and family cancer history for ovarian cancer patients.Journal of gynecologic oncology · 2014Article
- Family communication following BRCA1/2 genetic testing: a close look at the process.Journal of genetic counseling · 2013Article
- 100 years Lynch syndrome: what have we learned about psychosocial issues?Familial cancer · 2013Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
In familial breast/ovarian cancer, the information that the proband is able to supply about other family members is of critical importance for genetic counseling. This frequently requires family communication. Forty-six women attending a cancer genetics clinic were interviewed as part of a longitudinal study. Nearly all reported affected maternal, rather than paternal relatives, which may indicate lack of awareness by women with paternal histories. There was also much more communication among female relatives. Mothers, where they were still alive, were key figures in supplying family information. Although the majority of the sample contacted at least one relative regarding counseling, most named a relative with whom they did not feel able to communicate on this subject. Probands balanced the perceived obligation of passing on information with that of not causing alarm. Communication, both obtaining and giving information, was impeded by adoption, divorce and remarriage, family rifts, and large age gaps between siblings.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.