ArticleJournal of genetic counseling2000
Threat to Parental Role: A Possible Mechanism of Altered Self-Concept Related to Carrier Knowledge.
Article in Journal of genetic counseling, 2000. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Fabry disease practice guidelines: recommendations of the National Society of Genetic Counselors.Journal of genetic counseling · 2013Guideline
- Policy recommendations for carrier testing and predictive testing in childhood: a distinction that makes a real difference.Journal of genetic counseling · 2005Guideline
- Genetic counseling for fragile x syndrome: updated recommendations of the national society of genetic counselors.Journal of genetic counseling · 2005Guideline
- Systematic scoping review of the concept of 'genetic identity' and its relevance for germline modification.PloS one · 2020Article
- Criteria for reporting incidental findings in clinical exome sequencing - a focus group study on professional practices and perspectives in Belgian genetic centres.BMC medical genomics · 2019Article
- Why Do Parents Want to Know their Child's Carrier Status? A Qualitative Study.Journal of genetic counseling · 2016Article
- Support Seeking or Familial Obligation: An Investigation of Motives for Disclosing Genetic Test Results.Health communication · 2016Article
- Influence of genetic risk information on parental role identity in adolescent girls and young women from families with fragile X syndrome.Journal of genetic counseling · 2012Article
- Development and validation of an instrument to measure the impact of genetic testing on self-concept in Lynch syndrome.Clinical genetics · 2011Article
- Extended family impact of genetic testing: the experiences of X-linked carrier grandmothers.Journal of genetic counseling · 2011Article
- Can self-esteem, mastery and perceived stigma predict long-term adjustment in women carrying a BRCA1/2-mutation? Evidence from a multi-center study.Familial cancer · 2010Article
- The FAP self-concept scale (adult form).Familial cancer · 2009Article
- Adolescent carrier testing in practice: the impact of legal rulings and problems with "gillick competence".Journal of genetic counseling · 2008Article
- Living with genetic risk: effect on adolescent self-concept.American journal of medical genetics. Part C, Seminars in medical genetics · 2008Article
- Illness representations, self-regulation, and genetic counseling: a theoretical review.Journal of genetic counseling · 2006Review
- Using the impact of event scale to evaluate psychological response to being a phenylketonuria gene carrier.Journal of genetic counseling · 2004Article
- Genetic Counselors' Experiences with Paternal Involvement in Prenatal Genetic Counseling Sessions: An Exploratory Investigation.Journal of genetic counseling · 2003Article
- Genetic Counseling and Screening of Consanguineous Couples and Their Offspring: Recommendations of the National Society of Genetic Counselors.Journal of genetic counseling · 2002Article
- Fabry disease in genetic counseling practice: recommendations of the National Society of Genetic Counselors.Journal of genetic counseling · 2002Article
- PSYCHIATRIC DISORDERS ASSOCIATED WITH FXTAS.Current psychiatry reviewsArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Researchers and clinicians have suggested that learning one is a carrier for a genetic disorder has the potential to alter self-concept. Concerns about self-concept have influenced the development of policies regarding the availability of carrier testing for minors and the informed-consent process. A literature review identified three mechanisms through which self-concept has been proposed to be affected: altered perception of genetic identity, diminished social identity, and an altered perception of health. This paper presents a conceptual framework developed from identity theory and the "self's response to threat" to propose a fourth mechanism: threat to the parental role. Clarification of the role of self-concept, the threat to self-concept related to carrier knowledge, and coping behaviors activated in response to this threat would help to target appropriate genetic counseling interventions.
Identifiers
26141472What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.