ArticleSociology of health & illness2016
'Rule your condition, don't let it rule you': young adults' sense of mastery in their accounts of growing up with a chronic illness.
Article in Sociology of health & illness, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
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Who cites it
14 citing papers in PubMed.
- Exploring the use of smartphone monitoring for young adults with Tuberous Sclerosis Complex (TSC): a qualitative analysis.Orphanet journal of rare diseases · 2026Article
- Self-Management Interventions in Young Adults (18-30 Years) With Type 1 Diabetes, Sickle Cell Disease, and Inflammatory Bowel Disease: A Scoping Review.Chronic diseases and translational medicine · 2026Review
- Article
- Navigating the Limits of Diagnosis: Young Adults' Experiences of Chronic Living.Sociology of health & illness · 2025Article
- Diagnosis and the practices of patienthood: How diagnostic journeys shape illness experiences.Sociology of health & illness · 2024Article
- The psychometric properties of the Pearlin Mastery Scale in persons living with restless legs syndrome.PloS one · 2024Article
- 'Struggling to participate in everyday life': emerging adults' experiences of living with long-term health challenges.BMC public health · 2023Article
- Self-management support for young people living with fluctuating chronic diseases.Archives of disease in childhood · 2022Article
- The Influence of Family Multi-Institutional Involvement on Children's Health Management Practices.Children (Basel, Switzerland) · 2022Article
- Transitions to adulthood: self-governance and disciplining in the making of patient citizens.Sociology of health & illness · 2020Article
- Subjective Experience of Illness Among Adolescents and Young Adults With Diabetes: A Qualitative Research Study.Journal of patient experience · 2018Article
- Living with cystic fibrosis - a qualitative study of a life coaching intervention.Patient preference and adherence · 2018Article
- Article
- From breathless to failure: symptom onset and diagnostic meaning in patients with heart failure-a qualitative study.BMJ open · 2017Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Poor control of chronic illness is often attributed to patients' non-adherence to medical advice and treatment. Policy and practice has traditionally focused on improving adherence, assuming that the more patients comply, the better their control and outcomes will be. Drawing on complexity theory, we question this logic in a secondary analysis of qualitative data from studies of young adults' experiences of growing up with a chronic illness. Examining their sense of mastery of their condition, we found they valued both being in medical control of their condition and having autonomy but had different ideas about how to achieve these goals. While some young adults mostly shared the traditional medical view that achieving good control was the key to retaining their autonomy, others saw control and autonomy as independent, non-linear and potentially conflicting goals. The latter endeavoured to achieve both goals by striking a balance, variously adopting strategies of engagement with and resistance to their regime in the changing social contexts of their lives. We suggest that policy and practice needs to do more to promote autonomy and adaptive capacity, rather than simply maximising adherence and control, recognising the mundane complexity of living with and managing a chronic illness.
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