ArticleJournal of medical ethics2015
Public participation in genetic databases: crossing the boundaries between biobanks and forensic DNA databases through the principle of solidarity.
Article in Journal of medical ethics, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
4 citing papers in PubMed.
- Epistemic domination by data extraction: questioning the use of biometrics and mobile phone data analysis in asylum procedures.Journal of ethnic and migration studies · 2024Article
- The attitude of young people in the city of Yakutsk to DNA-testing.International journal of circumpolar health · 2021Article
- What influences public views on forensic DNA testing in the criminal field? A scoping review of quantitative evidence.Human genomics · 2019Article
- Young people's awareness on biobanking and DNA profiling: results of a questionnaire administered to Italian university students.Life sciences, society and policy · 2017Article
Corrections and comments
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The ethical aspects of biobanks and forensic DNA databases are often treated as separate issues. As a reflection of this, public participation, or the involvement of citizens in genetic databases, has been approached differently in the fields of forensics and medicine. This paper aims to cross the boundaries between medicine and forensics by exploring the flows between the ethical issues presented in the two domains and the subsequent conceptualisation of public trust and legitimisation. We propose to introduce the concept of 'solidarity', traditionally applied only to medical and research biobanks, into a consideration of public engagement in medicine and forensics. Inclusion of a solidarity-based framework, in both medical biobanks and forensic DNA databases, raises new questions that should be included in the ethical debate, in relation to both health services/medical research and activities associated with the criminal justice system.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.