Trial reportJournal of pediatric psychology
Lessons Learned From a Randomized Controlled Trial of a Family-Based Intervention to Promote School Functioning for School-Age Children With Sickle Cell Disease.
Trial report in Journal of pediatric psychology. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 7 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed, 7 syntheses or guidelines pooled it.
- Effectiveness of psychological interventions for children eligible for pediatric palliative care: systematic review and meta-analysis.BMC pediatrics · 2026Pooled it
- Self-management interventions for children and young people with sickle cell disease: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2023Pooled it
- Individual-level behavioral interventions to support optimal development of children with sickle cell disease: A systematic review.Pediatric blood & cancer · 2023Pooled it
- Psychological interventions for parents of children and adolescents with chronic illness.The Cochrane database of systematic reviews · 2019Pooled it
- Effects of caregiver-involved interventions on the quality of life of children and adolescents with chronic conditions and their caregivers: a systematic review and meta-analysis.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2019Pooled it
- Psychological therapies for the management of chronic and recurrent pain in children and adolescents.The Cochrane database of systematic reviews · 2018Pooled it
- Interventions for patients and caregivers to improve knowledge of sickle cell disease and recognition of its related complications.The Cochrane database of systematic reviews · 2016Pooled it
- Trial
- Improving self-management in adolescents with sickle cell disease.Pediatric blood & cancer · 2020Trial
- HABIT, a Randomized Feasibility Trial to Increase Hydroxyurea Adherence, Suggests Improved Health-Related Quality of Life in Youths with Sickle Cell Disease.The Journal of pediatrics · 2018Trial
- Health-related quality of life among patients with sickle cell disease in the hereditary blood disease center in Saudi Arabia.Medicine · 2026Article
- Community-engaged research in psychological interventions for pediatric sickle cell disease: a scoping review.Journal of pediatric psychology · 2025Article
- Practice Patterns for Addressing Developmental-Behavioral Concerns in Sickle Cell Specialty Care.Clinical practice in pediatric psychology · 2023Article
- Impact of sickle cell disease on patients' daily lives, symptoms reported, and disease management strategies: Results from the international Sickle Cell World Assessment Survey (SWAY).American journal of hematology · 2021Article
- Social-ecological predictors of school functioning in Hispanic children treated for cancer with central nervous system-directed therapies.Pediatric blood & cancer · 2020Article
- A Multidisciplinary Educational Approach for Children With Chronic Illness: An Intervention Case Study.Continuity in education · 2020Article
- iCanCope with Sickle Cell Pain: Design of a randomized controlled trial of a smartphone and web-based pain self-management program for youth with sickle cell disease.Contemporary clinical trials · 2018Article
- Family Functioning, Medical Self-Management, and Health Outcomes Among School-Aged Children With Sickle Cell Disease: A Mediation Model.Journal of pediatric psychology · 2018Article
- Summer Camps for Children with Sickle Cell Disease.Ochsner journal · 2018Review
- Increased theta band EEG power in sickle cell disease patients.Journal of pain research · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors.
Funding
Abstract
objectiveTested a family-based group problem-solving intervention, "Families Taking Control," (FTC) to improve school functioning and health-related quality of life (HRQL) for children with sickle cell disease.
methodChildren and caregivers completed questionnaires assessing HRQL and school functioning and children completed performance-based measures of IQ and achievement at baseline and 6 months later. Families were randomized to the intervention (FTC, n = 42) or delayed intervention control (DIC, n = 41) group. FTC involved a full-day workshop followed by 3 booster calls.
resultsThere were no differences between FTC completers (n = 24) and noncompleters (n = 18). FTC group (n = 24) and DIC group (n = 38) did not differ significantly on primary outcomes at follow-up: number of formal academic and disease-related accommodations, individualized education plan/504 service plan, school absences, school HRQL, or academic skills.
conclusionsAlthough families found FTC to be acceptable, there were no intervention effects. Challenges of the trial and implications for future research are discussed.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.