ArticleBMJ open2015
What matters most for end-of-life care? Perspectives from community-based palliative care providers and administrators.
Article in BMJ open, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
27 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Defining end of life in dementia: A systematic review.Palliative medicine · 2021Pooled it
- Enhancing end-of-life care nursing competency: a nursing education quality improvement project in general medical wards.BMJ open quality · 2025Article
- "We need time, a great know-how and security for patients to always be there in time": a qualitative study on factors distinguishing General from Specialized Palliative Home Care.BMC health services research · 2025Article
- Loneliness in Seriously Ill Nursing Home Residents During the COVID-19 Pandemic.Journal of palliative medicine · 2024Article
- Psychological interventions for emotional well-being in adults with advanced progressive life-limiting illness.The Cochrane database of systematic reviews · 2024Article
- Validation of Two Questionnaires Assessing Nurses' Perspectives on Addressing Psychological, Social, and Spiritual Challenges in Palliative Care Patients.Nursing reports (Pavia, Italy) · 2024Article
- Where are the values in evaluating palliative care? Learning from community-based palliative care provision.Palliative care and social practice · 2024Article
- Interrater agreement of multi-professional case review as reference standard for specialist palliative care need: a mixed-methods study.BMC palliative care · 2023Article
- POMSNAME: an aide-mémoire to improve the assessment and documentation of palliative care - a longitudinal project.BMC palliative care · 2023Article
- Actual timing versus GPs' perceptions of optimal timing of advance care planning: a mixed-methods health record-based study.BMC primary care · 2022Article
- Are nurse`s needs assessment methods robust enough to recognise palliative care needs in people with dementia? A scoping review.BMC nursing · 2022Article
- Quality of end-of-life care in general practice - a pre-post comparison of a two-tiered intervention.BMC primary care · 2022Article
- What are the personal last wishes of people with a life-limiting illness? Findings from a longitudinal observational study in specialist palliative care.BMC palliative care · 2022Observational
- Palliative Care in Older People with Multimorbidities: A Scoping Review on the Palliative Care Needs of Patients, Carers, and Health Professionals.International journal of environmental research and public health · 2022Article
- Change in perception of the quality of death in the intensive care unit by healthcare workers associated with the implementation of the "well-dying law".Intensive care medicine · 2022Article
- Natural language word embeddings as a glimpse into healthcare language and associated mortality surrounding end of life.BMJ health & care informatics · 2021Article
- "The system is well intentioned, but complicated and fallible" interviews with caregivers and decision makers about palliative care in Canada.BMC palliative care · 2021Article
- Healthcare professionals' perspectives of patient and family preferences of patient place of death: a qualitative study.BMC palliative care · 2021Article
- Communication of advance care planning decisions: a retrospective cohort study of documents in general practice.BMC palliative care · 2020Article
- Determining the prevalence of palliative needs and exploring screening accuracy of depression and anxiety items of the integrated palliative care outcome scale - a multi-centre study.BMC palliative care · 2020Observational
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesThere has been little research conducted to understand the essential meaning of quality, community-based, end-of-life (EOL) care, despite the expansion of these services. The purpose of this study was to define what matters most for EOL care from the perspective of a diverse range of palliative care providers in the community who have daily encounters with death and dying.
methodsWe used interviews to explore the perceptions of providers and administrators from 14 specialised palliative care teams in Ontario, Canada. Participants were prompted with the question 'What matters most for EOL care?' Responses were analysed using a phenomenological approach to derive themes depicting the universal essence of EOL care.
resultsData from 107 respondents were obtained and analysed, from which 40 formulated concepts emerged; these were further grouped into 9 themes. Of the respondents, 39% were nurses, 19% physicians, 27% were supervisors or executives and 15% other. The most predominate concept was that Patient's Wishes are Fulfilled, cited by almost half the respondents. The most prominent themes were Addressing the Non-physical Needs, Healthcare Teams' Nature of Palliative Care Delivery, Patient Wishes are Honoured, Addressing the Physical Needs, Preparing for and Accepting Death, Communication and Relationship Development, and Involving and Supporting the Family.
conclusions9 critical domains of EOL care evolved from the interviews, indicating that quality EOL care extends beyond managing physical pain, but includes a holistic perspective of care, a healthcare team dedicated to the EOL journey and a patient-centred pathway. Tailoring the provision of care to consider these important elements plays a critical role in supporting a positive EOL experience for patients and families.
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