Evidence map›Paper›PMID 26123983›Full record

SynthesisQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2016

Ostomy-related problems and their impact on quality of life of colorectal cancer ostomates: a systematic review.

Sylvia M Vonk-Klaassen, Hilde M de Vocht, Marjolein E M den Ouden, Eric Hans Eddes, Marieke J Schuurmans

Registry-linked trialAbstract readSystematic Review
PubMed Full text at PMC Publisher
In one paragraph

Synthesis in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT07512817 (The Effect of Online Solution- Focused Group Counseling On Adjustment, Psychological Well- Being and Resilience in Individuals), which is not on this map. Cited by 162 papers, 8 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
162citing papers in PubMed, 8 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT07512817 naactive not recruitingnot on this mapstarted 2025, after this paper: background citation

The Effect of Online Solution- Focused Group Counseling On Adjustment, Psychological Well- Being and Resilience in Individuals: A Randomized Controlled Trial

TypeinterventionalSponsorGazi UniversityRan2025 to 2026Enrolled48ConditionsAdjustment, Resilience, Psychological Well-beingArmsSolution- focused group counseling
3 · Its place in the literature

Who cites it

162 citing papers in PubMed, 8 syntheses or guidelines pooled it.

  1. Pooled it
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  5. Guideline
  6. Patient reported outcome measures assessing quality of life in patients with an intestinal stoma: A systematic review.Colorectal disease : the official journal of the Association of Coloproctology of Great Britain and Ireland · 2022
    Pooled it
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  11. Impact of Ostomy Self-Management Telehealth training for rural cancer survivors on health care utilization and economic outcomes in the United States.The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association · 2025
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  15. StomaCare: quality of life impact after enhanced follow-up of ostomy patients by a home healthcare nursing service-a multicentre, randomized, controlled trial.Colorectal disease : the official journal of the Association of Coloproctology of Great Britain and Ireland · 2023
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102 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Sylvia M Vonk-KlaassenResearch Centre for Elderly Care and Palliative Care, University of Applied Sciences Saxion, PO Box 70.000, 7500 KB, Deventer, Enschede, The Netherlands. s.m.vonk@saxion.nl.
Hilde M de VochtResearch Centre for Elderly Care and Palliative Care, University of Applied Sciences Saxion, PO Box 70.000, 7500 KB, Deventer, Enschede, The Netherlands.
Marjolein E M den OudenResearch Centre for Elderly Care and Palliative Care, University of Applied Sciences Saxion, PO Box 70.000, 7500 KB, Deventer, Enschede, The Netherlands.
Eric Hans EddesDeventer Ziekenhuis, Deventer, The Netherlands.
Marieke J SchuurmansDepartment of Rehabilitation, Nursing Science and Sports, University Medical Center Utrecht, Utrecht, The Netherlands.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

aimMany long-term ostomates are 'out-of-sight' of healthcare, and it is unknown how ostomates deal with ostomy-related problems and how these problems affect their quality of life (QOL). The aim is to examine patient-related studies describing ostomy-related problems and their impact on the perceived QOL of long-term colostomates.

methodsThe electronic databases PubMed (MEDLINE), CINAHL, Cochrane Library and PsycINFO were systematically searched. All studies were included in which ostomy-specific QOL was measured using validated multidimensional instruments.

resultsOf the 6447 citations identified, 14 prevailingly descriptive cross-sectional studies were included. Three different validated multidimensional instruments for measuring QOL in ostomates were used (EORTC C30/CR38, MCOHQOLQO, Stoma QOL Questionnaire). All studies demonstrated that living with a colostomy influences the overall QOL negatively. The ostomy-related problems described included sexual problems, depressive feelings, gas, constipation, dissatisfaction with appearance, change in clothing, travel difficulties, feeling tired and worry about noises.

conclusionIn conclusion, all 14 studies gave an indication of the impact of ostomy-related problems on the perceived QOL and demonstrated that a colostomy influences the QOL negatively. There is a wide range of ostomy-specific QOL scores, and there seem to be higher QOL scores in the studies where the MCOHQOLQO instrument was used. The MCOHQOLQO and the Stoma QOL Questionnaire gave the most detailed information about which ostomy-related problems were experienced. This review adds knowledge about the impact of stoma-related problems on QOL of long-term ostomates, but more research has to be conducted, to detect ostomy-related problems and especially possible care needs.

Indexed as

AgedAnxietyColorectal NeoplasmsColostomyConstipationCross-Sectional StudiesEmotionsFatigueFemaleHumansMaleMiddle AgedQuality of LifeSurveys and QuestionnairesColostomatesOstomy-related problemsQuality of life

Identifiers

PMID26123983
PMCPMC4706578

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.