ReviewYearbook of medical informatics2015
Patient Portals as a Means of Information and Communication Technology Support to Patient- Centric Care Coordination - the Missing Evidence and the Challenges of Evaluation. A joint contribution of IMIA WG EVAL and EFMI WG EVAL.
Review in Yearbook of medical informatics, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 39 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
39 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Adult patient access to electronic health records.The Cochrane database of systematic reviews · 2021Pooled it
- Health Care Professionals' Experiences of Patient-Professional Communication Over Patient Portals: Systematic Review of Qualitative Studies.Journal of medical Internet research · 2020Pooled it
- The impact of health information technology on the management and follow-up of test results - a systematic review.Journal of the American Medical Informatics Association : JAMIA · 2019Pooled it
- Factors Influencing User Satisfaction in Accessing Health Data: Cross-Sectional Survey of United Kingdom Adults.JMIR human factors · 2026Article
- Design and evaluation patient portal for patients with HTLV-1.BMC medical informatics and decision making · 2025Article
- Digital Information Ecosystems in Modern Care Coordination and Patient Care Pathways and the Challenges and Opportunities for AI Solutions.Journal of medical Internet research · 2024Article
- Intention to use personal health record system and its predictors among chronic patients enrolled at public hospitals in Bahir Dar city, northwest Ethiopia: using modified UTAUT2 model.Frontiers in medicine · 2024Article
- Addressing Evaluation Barriers with Early Innovation Development for Adolescent-Focused Sexual and Reproductive Health Interventions.Prevention science : the official journal of the Society for Prevention Research · 2023Article
- Perspectives of Patients About Immediate Access to Test Results Through an Online Patient Portal.JAMA network open · 2023Article
- Power of narrative: a case study about documenting private insightful experiences while dealing with pain and associated disability.Frontiers in digital health · 2023Article
- A comprehensive eHealth implementation guide constructed on a qualitative case study on barriers and facilitators of the digital care platform CMyLife.BMC health services research · 2022Article
- Clinician documentation of patient centered care in the electronic health record.BMC medical informatics and decision making · 2022Article
- Improvement and Evaluation of the TOPCOP Taxonomy of Patient Portals: Taxonomy-Evaluation-Delphi (TED) Approach.Journal of medical Internet research · 2021Article
- Development and Validation of a Useful Taxonomy of Patient Portals Based on Characteristics of Patient Engagement.Methods of information in medicine · 2021Article
- The Causal Relationship Between Portal Usage and Self-Efficacious Health Information-Seeking Behaviors: Secondary Analysis of the Health Information National Trends Survey Data.Journal of medical Internet research · 2021Article
- An implementation model for managing cloud-based longitudinal care plans for children with medical complexity.Journal of the American Medical Informatics Association : JAMIA · 2021Article
- Predictors of Patient Portal Use Among Community-Dwelling Older Adults.Research in gerontological nursing · 2021Article
- Article
- User-centered design of a longitudinal care plan for children with medical complexity.Journal of the American Medical Informatics Association : JAMIA · 2020Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo review the potential contribution of Information and Communication Technology (ICT) to enable patient-centric and coordinated care, and in particular to explore the role of patient portals as a developing ICT tool, to assess the available evidence, and to describe the evaluation challenges.
methodsReviews of IMIA, EFMI, and other initiatives, together with literature reviews.
resultsWe present the progression from care coordination to care integration, and from patient-centric to person-centric approaches. We describe the different roles of ICT as an enabler of the effective presentation of information as and when needed. We focus on the patient's role as a co-producer of health as well as the focus and purpose of care. We discuss the need for changing organisational processes as well as the current mixed evidence regarding patient portals as a logical tool, and the reasons for this dichotomy, together with the evaluation principles supported by theoretical frameworks so as to yield robust evidence.
conclusionsThere is expressed commitment to coordinated care and to putting the patient in the centre. However to achieve this, new interactive patient portals will be needed to enable peer communication by all stakeholders including patients and professionals. Few portals capable of this exist to date. The evaluation of these portals as enablers of system change, rather than as simple windows into electronic records, is at an early stage and novel evaluation approaches are needed.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.