ArticleHealth expectations : an international journal of public participation in health care and health policy2016
Supporting quality public and patient engagement in health system organizations: development and usability testing of the Public and Patient Engagement Evaluation Tool.
Article in Health expectations : an international journal of public participation in health care and health policy, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 135 papers, 7 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Enhancing Evidence-Based Practice for Youth and Emerging Adults With Early Psychosis: Implementation and Evaluation in Diverse Service Settings
Evaluation of a Brief Intervention to Improve Engagement and Recovery for At-risk Youth Enrolled in Early Intervention Services for Psychosis .
Who cites it
135 citing papers in PubMed, 7 syntheses or guidelines pooled it.
- Developing forensic patient-oriented research guidelines: a rapid review using an integrated knowledge translation approach.Frontiers in psychiatry · 2026Pooled it
- Pooled it
- Effects of consumers and health providers working in partnership on health services planning, delivery and evaluation.The Cochrane database of systematic reviews · 2021Pooled it
- Frameworks for supporting patient and public involvement in research: Systematic review and co-design pilot.Health expectations : an international journal of public participation in health care and health policy · 2019Pooled it
- Metrics and Evaluation Tools for Patient Engagement in Healthcare Organization- and System-Level Decision-Making: A Systematic Review.International journal of health policy and management · 2018Pooled it
- Engaging patients to improve quality of care: a systematic review.Implementation science : IS · 2018Pooled it
- Patient and public engagement in priority setting: A systematic rapid review of the literature.PloS one · 2018Pooled it
- Patient involvement in developing a patient-targeted feedback intervention after depression screening in primary care within the randomized controlled trial GET.FEEDBACK.GP.Health expectations : an international journal of public participation in health care and health policy · 2021Trial
- Partnering with patients and the public in the clinical trials ecosystem: a decade of lessons learned and shared.BMJ open · 2026Review
- Ripple effects of a patient & health-system partnered engagement project: a co-developed protocol.Research involvement and engagement · 2026Review
- Disrupting power hierarchies: applying a trauma- informed, intersectional, reflexive engagement strategy.Research involvement and engagement · 2026Article
- "I am struggling to find an explicit task"-a midterm evaluation of patient research partner involvement in HIPPOCRATES translational research.EULAR rheumatology open · 2026Article
- Co-creating discovery in basic science: Challenges and opportunities in patient-partnered research for rare liver disease.Canadian liver journal · 2026Article
- Evaluating parent-led research: the power of partnership and arts-based knowledge mobilization.Research involvement and engagement · 2026Article
- The Readability of Patient-Reported Measures in Early Psychosis.Schizophrenia bulletin · 2026Article
- Establishing a Consumer Panel to Inform Health Technology Assessment Processes and Policy: impact and insights from Singapore's experience.International journal of technology assessment in health care · 2026Article
- Patient involvement in health technology assessment: a new process in Singapore.International journal of technology assessment in health care · 2026Article
- Development of a patient advocate committee for a pediatric biobank.Research involvement and engagement · 2026Article
- A practical step-by-step approach for patient and public involvement in eHealth intervention research: Lessons learned from three case projects.Internet interventions · 2026Article
- Partnership by design: co-designing an institutional framework for engagement at a leading Canadian pediatric hospital.Research involvement and engagement · 2026Article
75 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
objectivesOnly rudimentary tools exist to support health system organizations to evaluate their public and patient engagement (PPE) activities. This study responds to this gap by developing a generic evaluation tool for use in a wide range of organizations.
methodsThe evaluation tool was developed through an iterative, collaborative process informed by a review of published and grey literature and with the input of Canadian PPE researchers and practitioners. Over a 3-year period, structured e-mail, telephone and face-to-face exchanges, including a modified Delphi process, were used to produce an evaluation tool that includes core principles of high-quality engagement, expected outcomes for each principle and three unique evaluation questionnaires that were tested and revised with input from 65 end users.
resultsThe tool is structured around four core principles of 'quality engagement': (i) integrity of design and process; (ii) influence and impact; (iii) participatory culture; and (iv) collaboration and common purpose. Three unique questionnaires were developed to assess each of these four evaluation domains from the following perspectives: (i) those who participate in PPE activities; (ii) those who plan, execute or sponsor PPE activities within organizations; and (iii) those who provide the leadership and capacity for PPE within their organizations.
conclusionsThis is the first known collaboration of researchers and practitioners in the co-design of a comprehensive PPE evaluation tool aimed at three distinct respondent groups and for use in a wide range of health system organization settings.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.