Evidence map›Paper›PMID 26111552›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2016

Measurement challenges in shared decision making: putting the 'patient' in patient-reported measures.

Paul J Barr, Glyn Elwyn

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 40 papers, 4 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
40citing papers in PubMed, 4 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

40 citing papers in PubMed, 4 syntheses or guidelines pooled it.

  1. Can electronic assessment tools improve the process of shared decision-making? A systematic review.Health information management : journal of the Health Information Management Association of Australia · 2023
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  13. Item development for a patient-reported measure of compassionate healthcare in action.Health expectations : an international journal of public participation in health care and health policy · 2024
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

Paul J BarrThe Dartmouth Institute for Health Policy and Clinical Practice, Dartmouth College, Hanover, NH, USA. paul.j.barr@dartmouth.edu.
Glyn ElwynThe Dartmouth Institute for Health Policy and Clinical Practice, Dartmouth College, Hanover, NH, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Measuring clinicians' shared decision-making (SDM) performance is a key requirement given the intensity of policy interest in many developed countries - yet it remains one of the most difficult methodological challenges, which is a concern for many stakeholders. In this Viewpoint Article, we investigate the development of existing patient-reported measures (PRMs) of SDM identified in a recent review. We find that patients were involved in the development of only four of the 13 measures. This lack of patient involvement in PRM development is associated with two major threats to content validity, common to all 13 PRMs of SDM: (i) an assumption of patient awareness of 'decision points' and (ii) an assumption that there is only one decision point in each healthcare consultation. We provide detailed examples of these threats and their impact on accurate assessment of SDM processes and outcomes, which may hamper efforts to introduce incentives for SDM implementation. We propose cognitive interviewing as a recommended method of involving patients in the design of PRMs in the field of SDM and provide a practical example of this approach.

Indexed as

Decision MakingPhysician-Patient RelationsCooperative BehaviorHumansPatient ParticipationPsychometricsSurveys and Questionnairesdecision makingpatient participationphysician-patient relationspsychometrics/instrumentation

Identifiers

PMID26111552
PMCPMC5054852

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.