ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2016
Using a personalized measure (Patient Generated Index (PGI)) to identify what matters to people with cancer.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
14 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Pooled it
- Patient-Reported Outcomes for Patients with Previously Treated Small Cell Lung Cancer Receiving Tarlatamab: Results from the DeLLphi-301 Phase 2 Trial.Advances in therapy · 2025Trial
- The Patient Generated Index (PGI) as an early-warning system for predicting brain health challenges: a prospective cohort study for people living with Human Immunodeficiency Virus (HIV).Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Health related quality of life among pregnant women living with HIV in Kenya, results from comparing a patient generated index and the Euroqol 5 dimension 3 level.BMC women's health · 2022Article
- Fatigue and functional outcomes in cancer rehabilitation.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- Quality of life assessments in clinical practice using either the EORTC-QLQ-C30 or the SEIOQL-DW: a randomized study.Journal of patient-reported outcomes · 2021Article
- ThePalliative medicine · 2021Article
- Do Generic Preference-Based Measures Accurately Capture Areas of Health-Related Quality of Life Important to Individuals with Amyotrophic Lateral Sclerosis: A Content Validation Study.Patient related outcome measures · 2021Article
- Health utilities in cancer patients: A study protocol for a prospective, longitudinal cohort using online survey.Medicine · 2019Article
- Impact of reconceptualization response shift on rating of quality of life over time among people with advanced cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2018Article
- A review of the application, feasibility, and the psychometric properties of the individualized measures in cancer.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2017Review
- In support of an individualized approach to assessing quality of life: comparison between Patient Generated Index and standardized measures across four health conditions.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2017Article
- Agreement between personally generated areas of quality of life concern and standard outcome measures in people with advanced cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2016Article
- Design and Evaluation of the Electronic Patient-Generated Index.Nursing researchArticle
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposesPatient Generated Index (PGI) is designed to both ask and document quality of life (QOL) concerns. Its validity with respect to standard QOL measures has not been fully established for advanced cancer when QOL concerns predominate. The specific objective of this study is to identify, for people with advanced cancer, similarities and differences in ratings of global QOL between personalized and standard measures.
methodsA total of 192 patients completed five QOL measures at study entry: PGI, generic measures (SF-6D, EQ-5D), and cancer-specific measures of QOL (McGill Quality of Life Questionnaire and Edmonton Symptoms Assessment Scale). Comparisons among total scores were compared using Generalized Estimating Equations (GEE).
resultsPatients voiced 114 areas of QOL concerns by the PGI with the top three being fatigue, sleep, and pain (39.2, 22.6, and 21.6%, respectively). PGI total QOL score was 25 to 30 percentage points lower than those documented by the other measures, particularly when QOL was poor. Correlations between PGI and other measures were low.
conclusionPGI allowed patients to express a wide range of QOL concerns, many that were not assessed by other QOL measures. If only one QOL measure is to be included, either in a clinical setting or for research, the PGI would satisfy many of the criteria for "best choice." PGI could be considered a cancer-specific QOL measure. IMPLICATIONS FOR CANCER: This study provides evidence that the PGI would be a good measure for patients and clinicians to use together to identify areas of concern that require attention and monitor changing needs.
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