ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2016
"I might not have cancer if you didn't mention it": a qualitative study on information needed by culturally diverse cancer survivors.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
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Who cites it
18 citing papers in PubMed.
- Piloting a language translation device for Mandarin-speaking patients presenting for radiotherapy treatment-assessing patient and radiation therapist perspectives.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Trial
- Cancer survivorship programs for patients from culturally and linguistically diverse (CALD) backgrounds: a scoping review.Journal of cancer survivorship : research and practice · 2024Article
- Suffering and adjustment: a grounded theory of the process of coping with financial toxicity among young women with breast cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- The unmet information needs, quality of life, and care experiences of patients with neuroendocrine tumours (NETs) at follow-up: 6 months from diagnosis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Cancer Survivorship in the Indo-Pacific: Priorities for Progress.JCO global oncology · 2023Review
- Psychological distress, understanding of cancer and illness uncertainty in patients with Cancer of Unknown Primary.Psycho-oncology · 2022Article
- Chronic Illness Management in Culturally and Linguistically Diverse Patients: Exploring the Needs, Access, and Understanding of Information.Qualitative health research · 2021Article
- Equity across the cancer care continuum for culturally and linguistically diverse migrants living in Australia: a scoping review.Globalization and health · 2021Article
- A qualitative exploration of the unmet information needs of Chinese advanced cancer patients and their informal caregivers.BMC palliative care · 2021Article
- Exploring the 'Patient Experience' of Individuals with Limited English Proficiency: A Scoping Review.Journal of immigrant and minority health · 2019Article
- Supportive care priorities of low-income Latina breast cancer survivors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2018Article
- Australian integrative oncology services: a mixed-method study exploring the views of cancer survivors.BMC complementary and alternative medicine · 2018Article
- Cancer screening in Koreans: a focus group approach.BMC public health · 2018Article
- Listening to the consumer voice: developing multilingual cancer information resources for people affected by liver cancer.Health expectations : an international journal of public participation in health care and health policy · 2017Article
- Presentation and care of a family with Huntington disease in a resource-limited community.Journal of clinical movement disorders · 2017Article
- Psychosocial Experiences, Challenges, and Coping Strategies of Chinese-Australian Women with Breast Cancer.Asia-Pacific journal of oncology nursingArticle
- Developing Written Information for Cancer Survivors from Culturally and Linguistically Diverse Backgrounds: Lessons Learnt.Asia-Pacific journal of oncology nursingArticle
- Transforming Cancer Survivorship Care: An Australian Experience.Asia-Pacific journal of oncology nursingArticle
Corrections and comments
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Authors and funding
12 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundImmigrants from culturally and linguistically diverse (CALD) backgrounds diagnosed with cancer face multiple challenges with health systems foreign to them. There is scarce understanding about their needs following cancer treatment in the survivorship phase. Unmet needs were examined in immigrant Chinese and Greek cancer survivors in order to assist development of relevant and useful information resources for these CALD groups.
methodsQualitative descriptive design was used. Adult cancer survivors, whose native language was Mandarin, Cantonese or Greek, were recruited through ethnic cancer support groups and cancer specialists in two Australian cities. Six focus groups were conducted, two in each native language group. Recorded responses were transcribed, translated into English, and thematically analysed.
resultsThirty-nine CALD cancer survivors participated from Greek (11), Cantonese (14) and Mandarin (14) backgrounds. Thematic findings included as follows: ongoing cancer-related stressors, cancer misunderstandings, coping strategies, 'survivor' seldom reflects self-appraisal, and additional CALD survivorship information needed. Immigrant cancer survivors may prefer 'recovery' to 'survivorship' descriptors and need information similar to Caucasian cancer survivors alongside as follows: resources for navigating health care, financial and community entitlements; caregiver-directed information to enhance their support; explanations about differences in health care approaches between survivors' original and adopted countries; and acknowledgment of survivorship diversity within CALD groups.
conclusionsImmigrant cancer survivors' additional requirements to native survivors likely reflect challenges in dealing with foreign environments and varied levels of acculturation within group members. Identification of immigrant cancer survivorship issues may support development of targeted resources for promoting survivors' self-care and capacity for finding, choosing, and using existing support options.
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