ArticleThe American journal of bioethics : AJOB2015
Imposing genetic diversity.
Article in The American journal of bioethics : AJOB, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
6 citing papers in PubMed.
- Mapping ethical, legal, and social implications (ELSI) of preimplantation genetic testing (PGT).Journal of assisted reproduction and genetics · 2024Review
- Withholding or withdrawing life-sustaining treatment in extremely low gestational age neonates.Archives of disease in childhood. Fetal and neonatal edition · 2021Observational
- The value of bioethical research: A qualitative literature analysis of researchers' statements.PloS one · 2019Article
- Principles of Genetic Counseling in the Era of Next-Generation Sequencing.Annals of laboratory medicine · 2018Review
- Opening Pandora's box?: ethical issues in prenatal whole genome and exome sequencing.Prenatal diagnosis · 2018Review
- Reproductive genetic testing and human genetic variation in the era of genomic medicine.The American journal of bioethics : AJOB · 2015Article
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Authors and funding
1 author.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The idea that a world in which everyone was born "perfect" would be a world in which something valuable was missing often comes up in debates about the ethics of technologies of prenatal testing and preimplantation genetic diagnosis (PGD). This thought plays an important role in the "disability critique" of prenatal testing. However, the idea that human genetic variation is an important good with significant benefits for society at large is also embraced by a wide range of figures writing in the bioethics literature, including some who are notoriously hostile to the idea that we should not select against disability. By developing a number of thought experiments wherein we are to contemplate increasing genetic diversity from a lower baseline in order to secure this value, I argue that this powerful intuition is more problematic than is generally recognized, especially where the price of diversity is the well-being of particular individuals.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.