ArticleEuropean journal of human genetics : EJHG2016
Genetic counsellors in Sweden: their role and added value in the clinical setting.
Article in European journal of human genetics : EJHG, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
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Who cites it
13 citing papers in PubMed, 24 citations in OpenAlex.
- Thirty-years of genetic counselling education in Europe: a growing professional area.European journal of human genetics : EJHG · 2024Article
- Article
- Legal approaches to risk of harm in genetic counseling: perspectives from Quebec and Qatar.Frontiers in genetics · 2023Review
- The role of the Genetic Counsellor in the multidisciplinary team: the perception of geneticists in Europe.European journal of human genetics : EJHG · 2022Article
- Rapid Implementation of Telegenetic Counseling in the COVID-19 and Swedish Healthcare Context: A Feasibility Study.Frontiers in health services · 2022Article
- The genetic counseling profession in Austria: Stakeholders' perspectives.Journal of genetic counseling · 2021Article
- Prospects and challenges for the genetic counsellor profession in the German-speaking countries: report of a workshop.Medizinische Genetik : Mitteilungsblatt des Berufsverbandes Medizinische Genetik e.V · 2021Article
- The composition and capacity of the clinical genetics workforce in high-income countries: a scoping review.Genetics in medicine : official journal of the American College of Medical Genetics · 2020Article
- Developing a national certification pathway for genetic counselors in Sweden-a short report.Journal of community genetics · 2020Article
- Factors influencing use of telegenetic counseling: perceptions of health care professionals in Sweden.Journal of community genetics · 2019Article
- The Global State of the Genetic Counseling Profession.European journal of human genetics : EJHG · 2019Review
- Complementarity between medical geneticists and genetic counsellors: its added value in genetic services in Europe.European journal of human genetics : EJHG · 2017Article
- Telegenetics: an Update on Availability and Use of Telemedicine in Clinical Genetics Service.Journal of medical systems · 2017Article
Corrections and comments
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Authors and funding
3 authors at 3 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Genetic testing is becoming more commonplace in general and specialist health care and should always be accompanied by genetic counselling, according to Swedish law. Genetic counsellors are members of the multi-disciplinary team providing genetic counselling. This study examined the role and added value of genetic counsellors in Sweden, using a cross-sectional on-line survey. The findings showed that the genetic counsellors added value in the clinical setting by acting as the 'spider-in-the-web' regarding case management, having a more holistic, ethical and psychological perspective, being able to offer continuous support and build a relationship with the patient, and being more accessible than medical geneticists. The main difference between a genetic counsellor and medical geneticist was that the doctor had the main medical responsibility. Thus genetic counsellors in Sweden contribute substantially to the care of patients in the clinical genetic setting.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.