ArticleThe journal of spinal cord medicine2015
Methodology for the development and calibration of the SCI-QOL item banks.
Article in The journal of spinal cord medicine, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 36 papers, 2 of them syntheses that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
36 citing papers in PubMed, 2 syntheses or guidelines pooled it, 48 citations in OpenAlex.
- Measurement properties of the Traumatic Brain Injury Quality of Life (TBI-QoL) and Spinal Cord Injury Quality of Life (SCI-QoL) measurement systems: a systematic review.Systematic reviews · 2025Pooled it
- All metrics are equal, but some metrics are more equal than others: A systematic search and review on the use of the term 'metric'.PloS one · 2018Pooled it
- Guided internet-delivered cognitive-behaviour therapy for persons with spinal cord injury: a feasibility trial.Spinal cord · 2020Trial
- Examining the factor structure of health-related quality of life in spinal cord injury using confirmatory factor analysis and multidimensional scaling.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Overview of the limb injury measurement battery for quality of life (LIMB-QOL).Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Health-related quality of life after major extremity trauma: qualitative research with military service members and clinicians to inform measurement of patient-reported outcomes.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Rehabilitation to Improve Outcomes after Cervical Spine Surgery: Narrative Review.Journal of clinical medicine · 2024Review
- Self-reported effects of warm seasonal temperatures in persons with spinal cord injury.The journal of spinal cord medicine · 2024Article
- Adult outcomes for children who sustained firearm-related spinal cord injuries.The journal of spinal cord medicine · 2023Article
- Active or passive pain coping: Which predicts daily physical and psychosocial functioning in people with chronic pain and spinal cord injury?Rehabilitation psychology · 2022Observational
- Measurement invariance of physical, mental, and social health PROMIS measures across individuals with spinal cord injury and traumatic brain injury.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Article
- Article
- Spinal Cord Injury-Functional Index/Capacity: Responsiveness to Change Over Time.Archives of physical medicine and rehabilitation · 2022Article
- Assessment of quality of life after upper extremity transplantation: Framework for patient-reported outcome scale domains.Frontiers in psychology · 2022Article
- Integrating Spinal Cord Injury - Quality of Life instruments into rehabilitation: Implementation science to guide adoption of patient-reported outcome measures.The journal of spinal cord medicine · 2021Article
- Psychosocial aspects of health-related quality of life and the association with patient-reported bladder symptoms and satisfaction after spinal cord injury.Spinal cord · 2021Article
- Interviewer- versus self-administration of PROMIS® measures for adults with traumatic injury.Health psychology : official journal of the Division of Health Psychology, American Psychological Association · 2019Article
- The reliability of end of day and ecological momentary assessments of pain and pain interference in individuals with spinal cord injury.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2018Article
- Measuring pain phenomena after spinal cord injury: Development and psychometric properties of the SCI-QOL Pain Interference and Pain Behavior assessment tools.The journal of spinal cord medicine · 2018Article
- Sensitivity of alternative measures of functioning and wellbeing for adults with sickle cell disease: comparison of PROMIS® to ASCQ-Me℠.Health and quality of life outcomes · 2017Article
Corrections and comments
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Authors and funding
7 authors at 4 institutions in 1 country.
Funding
Abstract
objectiveTo develop a comprehensive, psychometrically sound, and conceptually grounded patient reported outcomes (PRO) measurement system for individuals with spinal cord injury (SCI).
methodsIndividual interviews (n=44) and focus groups (n=65 individuals with SCI and n=42 SCI clinicians) were used to select key domains for inclusion and to develop PRO items. Verbatim items from other cutting-edge measurement systems (i.e. PROMIS, Neuro-QOL) were included to facilitate linkage and cross-population comparison. Items were field tested in a large sample of individuals with traumatic SCI (n=877). Dimensionality was assessed with confirmatory factor analysis. Local item dependence and differential item functioning were assessed, and items were calibrated using the item response theory (IRT) graded response model. Finally, computer adaptive tests (CATs) and short forms were administered in a new sample (n=245) to assess test-retest reliability and stability. PARTICIPANTS AND PROCEDURES: A calibration sample of 877 individuals with traumatic SCI across five SCI Model Systems sites and one Department of Veterans Affairs medical center completed SCI-QOL items in interview format.
resultsWe developed 14 unidimensional calibrated item banks and 3 calibrated scales across physical, emotional, and social health domains. When combined with the five Spinal Cord Injury--Functional Index physical function banks, the final SCI-QOL system consists of 22 IRT-calibrated item banks/scales. Item banks may be administered as CATs or short forms. Scales may be administered in a fixed-length format only.
conclusionsThe SCI-QOL measurement system provides SCI researchers and clinicians with a comprehensive, relevant and psychometrically robust system for measurement of physical-medical, physical-functional, emotional, and social outcomes. All SCI-QOL instruments are freely available on Assessment CenterSM.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.