Evidence map›Paper›PMID 26010962›Full record

ArticleThe journal of spinal cord medicine2015

Overview of the Spinal Cord Injury--Quality of Life (SCI-QOL) measurement system.

David S Tulsky, Pamela A Kisala, David Victorson, Denise G Tate, Allen W Heinemann, Susan Charlifue, Steve C Kirshblum, Denise Fyffe, Richard Gershon, Ann M Spungen and 8 more

2 registry-linked trialsAbstract read
In one paragraph

Article in The journal of spinal cord medicine, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 101 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
101citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05221723 nacompletednot on this mapstarted 2022, after this paper: background citation

Functional Interval Training for People With Spinal Cord Injury and Their Care Partners

TypeinterventionalSponsorArkansas Colleges of Health EducationRan2022 to 2022Enrolled23ConditionsSpinal Cord InjuriesArmsHigh Intensity Interval Exercise Training Group
NCT07467850 nacompletednot on this mapstarted 2022, after this paper: background citation

Dual Stimulation for Spinal Cord Injury

TypeinterventionalSponsorSpaulding Rehabilitation HospitalRan2022 to 2024Enrolled8ConditionsSpinal Cord InjuriesArmstsDCS+pDCS, Low-level laser therapy
3 · Its place in the literature

Who cites it

101 citing papers in PubMed, 3 syntheses or guidelines pooled it.

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  13. Examining the factor structure of health-related quality of life in spinal cord injury using confirmatory factor analysis and multidimensional scaling.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Article
  14. Overview of the limb injury measurement battery for quality of life (LIMB-QOL).Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Article
  15. A methodological overview of new measure development for the Limb Injury Measurement Battery for Quality of Life (LIMB-QOL).Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Article
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  18. Using confirmatory factor analysis to identify symptom clusters in individuals with acquired disabilities.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
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  20. Article

41 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

18 authors.

David S Tulsky
Pamela A Kisala
David Victorson
Denise G Tate
Allen W Heinemann
Susan Charlifue
Steve C Kirshblum
Denise Fyffe
Richard Gershon
Ann M Spungen
Charles H Bombardier
Trevor A Dyson-Hudson
Dagmar Amtmann
Claire Z Kalpakjian
Seung W Choi
Alan M Jette
Martin Forchheimer
David Cella

Funding

NICHD NIH HHS 5R01HD0054659
6 · The paper itself

Abstract

CONTEXT/

objectiveThe Spinal Cord Injury--Quality of Life (SCI-QOL) measurement system was developed to address the shortage of relevant and psychometrically sound patient reported outcome (PRO) measures available for clinical care and research in spinal cord injury (SCI) rehabilitation. Using a computer adaptive testing (CAT) approach, the SCI-QOL builds on the Patient Reported Outcomes Measurement Information System (PROMIS) and the Quality of Life in Neurological Disorders (Neuro-QOL) initiative. This initial manuscript introduces the background and development of the SCI-QOL measurement system. Greater detail is presented in the additional manuscripts of this special issue.

designClassical and contemporary test development methodologies were employed. Qualitative input was obtained from individuals with SCI and clinicians through interviews, focus groups, and cognitive debriefing. Item pools were field tested in a multi-site sample (n=877) and calibrated using item response theory methods. Initial reliability and validity testing was performed in a new sample of individuals with traumatic SCI (n=245).

settingFive Model SCI System centers and one Department of Veterans Affairs Medical Center across the United States.

participantsAdults with traumatic SCI.

interventionsn/a OUTCOME MEASURES: n/a

resultsThe SCI-QOL consists of 19 item banks, including the SCI-Functional Index banks, and 3 fixed-length scales measuring physical, emotional, and social aspects of health-related QOL (HRQOL).

conclusionThe SCI-QOL measurement system consists of psychometrically sound measures for individuals with SCI. The manuscripts in this special issue provide evidence of the reliability and initial validity of this measurement system. The SCI-QOL also links to other measures designed for a general medical population.

Indexed as

Quality of LifeTrauma Severity IndicesAdultCalibrationHumansPsychometricsSpinal Cord InjuriesSurveys and QuestionnairesComputer Adaptive TestingHealth-Related Quality of LifeItem Response TheoryPatient Reported OutcomesSpinal Cord Injury

Identifiers

PMID26010962
PMCPMC4445018

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.