ArticleJournal of pediatric psychology2015
Condition Self-Management in Pediatric Spina Bifida: A Longitudinal Investigation of Medical Adherence, Responsibility-Sharing, and Independence Skills.
Article in Journal of pediatric psychology, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
30 citing papers in PubMed, 1 synthesis or guideline pooled it, 51 citations in OpenAlex.
- A Systematic Review of Behavioral Intervention Technologies for Youth With Chronic Health Conditions and Physical and Intellectual Disabilities: Implications for Adolescents and Young Adults With Spina Bifida.Journal of pediatric psychology · 2019Pooled it
- The transition from pediatric to adult healthcare in spina bifida: an interview-based measure.Journal of pediatric psychology · 2026Article
- Neuropsychological predictors of growth in condition-related self-management skill mastery in youth with spina bifida.Journal of pediatric psychology · 2025Article
- The daily phone diary in adolescents and young adults with spina bifida: utility and psychometric evidence.Journal of pediatric psychology · 2025Article
- The importance of friendship: influence of peer relationships on physical and mental health in youth with spina bifida.Journal of pediatric psychology · 2025Article
- Contextual predictors of self-management and independence trajectories in adolescents and young adults with spina bifida.Developmental medicine and child neurology · 2024Article
- Growth of condition-related knowledge among youth with spina bifida: associations with neurocognitive functioning and self-management skills.Journal of pediatric psychology · 2024Article
- The Effects of Race, Ethnicity, and Gender on Predictors of Asthma Medication Adherence among Early High School Students.Children's health care : journal of the Association for the Care of Children's Health · 2024Article
- Barriers to Adolescents' Adherence to Medical Advice after Metabolic Bariatric Surgery: A Statistical Analysis.Journal of clinical medicine · 2024Article
- "I'm a bathroom expert": a qualitative study exploring how students with physical disabilities manage toileting during college.Frontiers in pediatrics · 2024Article
- Longitudinal Trajectories of Clean Intermittent Catheterization Responsibility in Youths with Spina Bifida.The Journal of urology · 2022Article
- Medical responsibility growth in youth with spina bifida: Neuropsychological and parenting predictors.Health psychology : official journal of the Division of Health Psychology, American Psychological Association · 2021Article
- Cross-Lag Model of Medical Responsibility and Skills in Youth With Spina Bifida.Journal of pediatric psychology · 2021Article
- Factor Structure of Medical Autonomy Scales in Young People with Spina Bifida.Journal of pediatric psychology · 2021Article
- Social Skills and Medical Responsibility Across Development in Youth With Spina Bifida.Journal of pediatric psychology · 2021Article
- The Transition to Adult Health Care in Youth With Spina Bifida: Theory, Measurement, and Interventions.Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing · 2021Article
- The Adolescent/Young Adult Self-Management and Independence Scale (AMIS-II): Expanding evidence for validity and reliability.Journal of pediatric rehabilitation medicine · 2021Article
- Predictors of Distinct Trajectories of Medical Responsibility in Youth with Spina Bifida.Journal of pediatric psychology · 2020Article
- Longitudinal associations between neuropsychological functioning and medical responsibility in youth with spina bifida: The moderational role of parenting behaviors.Child neuropsychology : a journal on normal and abnormal development in childhood and adolescence · 2020Observational
- Pathways by which Maternal Factors are Associated With Youth Spina Bifida-Related Responsibility.Journal of pediatric psychology · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 1 institution in 1 country.
Funding
Abstract
objectiveThis study aimed to evaluate rates of medical adherence, responsibility, and independence skills across late childhood and adolescence in youth with spina bifida (SB) and to explore associations among these disease self-management variables.
method111 youth with SB, their parents, and a health professional participated at two time points. Informants completed questionnaires regarding medical adherence, responsibility-sharing, and child independence skills.
resultsYouth gained more responsibility and independence skills across time, although adherence rates did not follow a similar trajectory. Increased child medical responsibility was related to poorer adherence, and father-reported independence skills were associated with increased child responsibility.
conclusionsThis study highlights medical domains that are the most difficult for families to manage (e.g., skin checks). Although youth appear to gain more autonomy across time, ongoing parental involvement in medical care may be necessary to achieve optimal adherence across adolescence.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.